A Short Hospital Stay...

Surprisingly and nothing short of prayers answered, Jordan was able to come home Tuesday morning after a heavy day of many different chemos given on Monday. He's definitely not feeling the greatest and feeling very sad because he is not able to do fun Christmas activities. We find it very hard consoling him at this time, he very much prefers to be out and about. This week started out with Jordan's spirits being wonderful considering what he was up against. Now, he's not so happy...you put not feeling well on top of that, and there's nothing but tears...it breaks your heart. We are due back Wednesday and Thursday for more chemo. He will also be taking chemo pills for the next two weeks.

I keep reminding him that the hard part of chemo will be over very soon and that easier days are just around the corner! I'm going to say it again, we never thought we'd see the day!!! Now, the challenging part will be getting through the holidays.

I want to add that this Christmas, we are not only blessed with the precious birth of Baby Jesus, but we are also blessed with the precious life of our dear Jordan. We are still are family of four strong and for that we will be forever grateful.

Thank you all for the continuous prayers in a battle that at times seems never ending. May you all be truly blessed this Christmas season!!

Chemo Will Begin...

On Thursday Jordan had a doctors appointment that verified the pneumonia is better and his counts are well enough to start the round of chemo that was delayed last week. This coming up Monday we will once again be admitted to the hospital for another spinal tap with chemo that will consist of four medicines. One of which will be given during the time of the spinal, two through his pic line and one in pill form. We will stay the entire day on Monday and that night for sure. It will then be determined the next morning, after another push of chemo, if we will be able to go home. That will only be if Jordan is not to sick and throwing up. Regardless, whether we go home on Tuesday or not, he is do back on Wednesday and Thursday as well, to receive more chemo. The same will be repeated the following week minus one of the heavier drugs, which should make it a bit easier for Jordan.In honor of Jordan going bald from chemo, Shawn decided to surprise us all and came home with a shaved head. What a great dad he is! He didn't want Jordan to feel alone. There's nothing he wouldn't do for his boys. We are so lucky to have him! Shawn lifts our spirits everyday helping us to remain positive.

This weekend Tristen has a baseball tournament that will keep us busy and keep our minds off of what next week may bring. Prayers will be needed for us...we hope the hospital stay will be short and that Jordan will not get too sick so that all four of us will be able to be together for what is one of the most important holidays...Jesus' Birthday!!

Jordan Is Home!!

Jordan came home Saturday and it couldn't have come soon enough! I don't know how we could have tolerated another day in there. The fevers finally stopped after he was put on a third antibiotic and the pneumonia that started in the left lung has since moved to the right lung but thankfully it is a mild case, so they gave us the pass out!

I can't even dig deep enough to find the words to describe the despair that our family endured staying in the hospital this pass week, it's something that the four of us just can't handle anymore. I'm sure it's due to what we experienced in the beginning with Jordan. Any time the four of us have to be separated now just seems unbearable. It is as if we've stopped living and time is standing still.

BUT, thankfully we serve a God that can turn a dark situation into a good one. Where there seems to be no hope, he can turn it around. Where fear may consume you, we can as hard as it may seem, no matter what our circumstance, turn our fear into FAITH by not looking at the situation but at the outcome. This week our joy was stripped away...and I say that truly for Shawn, Tristen, Jordan, and myself...so it will be my mission to find that joy again for our family. I am going to start in the book of Philippians in the bible, it's all about Joy, and start speaking life and happiness back into our family again.

I don't know when chemo will resume, we are do back for an evaluation and more blood work on Thursday, so I'm sure we will discuss the plans for chemo then. I'm thinking the following week but who knows, at least we get a break from anything heavy this week.
I'm so glad we took the opportunity and went to Knotts Berry Farm on the Sunday before Jordan was admitted. The hospital gave us tickets and we were able to go with my sister and brother in law, Gary and Sherrie, and with Jordan's cousins, Joshua and Natalee. Jordan had a blast, he was feeling great and went on every roller coaster and spin ride there was. He went on the Ghost-rider...three times!! Jordan is defiantly a thrill seeker and didn't even get sick once. Me...the second ride did me in and I was done for. I got so nauseous and sick, I had to take one of Jordan's pills he takes after chemo. My sister and I then decided to hang out at Camp Snoopy with my four year old niece and I couldn't even look at the rides, let alone ride one, but thanks to his pill, I was better towards the end of the day. I know crazy...right, I was the joke of the day and gave everyone a good laugh!

So...soon we will find that happiness again, just like the happiness we had at Knotts Berry Farm. It may take some time for us to bounce back, but we wont give up, even when the going gets tough. This is when I say...Thank you Lord for catching every tear and knowing when we can handle no more.

Chemo Postponed

No chemo for Jordan this week, it has been pushed back. Monday evening Jordan was admitted to the hospital for a fever that kept on raising. After listening to his lungs and doing a chest x ray, it has been determined that he has a mild case of pneumonia in the lower left lung. He was immediately started on two powerful antibiotics that cover a wide spectrum of bacteria infections and treats pneumonia. As of last night, the fevers have not let up and only break with Tylenol. He is not feeling sick nor showing any signs that would have been a red flag to us, only the fevers. We are also waiting on blood cultures that take up to 48 hours to determine if there are any bacteria infections in his body, for example a blood infection due to his pic line. Once nothing shows growth on the cultures for three days, we may be able to go home after another chest x ray is done proving the pneumonia is clearing, and if the fever stops. There are a number of reasons for the fever, it may even be viral that antibiotics can not help.

We are looking at the earliest possibility of coming home being Friday, and we are counting on that!! Shawn, Tristen, Jordan and myself are not ready for any hospital stays to say the least. We will keep you posted.

A Wonderful Thanksgiving!

This Thanksgiving our family genuinely had something to be grateful for, as you can imagine it was an emotional one, but with happy hearts. Jordan didn't even throw up once from his chemo the day before. I believe seeing family really brought his mind to a happy place, not to mention we were able to go on our annual trip to the desert with many other family members to ride. Jordan actually rode his quad and loved riding his cousins dirt bike. He did really well for a kid being hit with chemo, we were impressed. It brought back some normalcy in his eyes...there is life after leukemia!

The next round of chemo will be a day earlier than expected. Jordan is do back this Tuesday, he will be admitted to the hospital for a spinal tap and he will also receive 4 other chemo medicines. We will stay in the hospital, hopefully for a short while, depending on how Jordan responds. This is a heavy round that not only consists of medicine given through his pick line, but of taking chemo pills as well. After Tuesday, Jordan will pretty much receive chemo consistently up until approximately December 30Th. If everything goes according to schedule and there are no delays, the aggressive part of therapy could officially end at the end of December and once his counts raise back up, he can start the maintenance phase!

So many people have been commenting on how much of Jordan's hair has been growing back and how good it looks. Today however, we noticed it all over his shirt...they warned us it would start to fall out again. Thankfully, he seems not to care one bit. His weight is at the highest it has been since he was first diagnosed, he weights 63lbs! They continue to do blood work weekly and all seems to be coming back looking as well as can be expected. His spirits have been wonderful and we are seeing his goofy personality come back everyday. We do have some heavy rounds coming up in the next two weeks, so please remember us in your prayers, not only for Jordan but for his big brother Tristen, this takes a toll on him as well, especially with Christmas being so close and us having to be in the hospital and at the doctors so much.

On a much happier note, Jordan is almost done with the aggressive part and that's what we keep our eyes focused on...we never thought we'd see this day!

Thanks to all that came out to the garage sale and supported Jordan's Cause. It was a huge success! Thank you to the generous people that donated money without buying anything at all and to the people that donated items to the sale just to help. Jordan was well enough most of the weekend to be there and meet some of his faithful supporters.

Jordan received chemo last Wednesday and is do back for a repeat this Wednesday. The effects of last week's chemo definitely kicked in, but not as bad as I've seen it in the past...thankfully. Come Saturday, he was pretty much back to himself. We should know what to expect with tomorrows chemo now and it seems he should be able to enjoy Thanksgiving somewhat. We will just have to be on top with the nauseous medicine. I think just being with cousins he hasn't seen in a while will lift his spirits and hopefully he will be distracted from feeling sick (at least that's what I'm hoping for). The next day back will be December 9th and it will be big, so we will definitely take advantage of the time off.

This Thanksgiving, I give thanks to LIFE my son has, when I think back to what could of been, my prayers instantly begin...giving thanks to God for his miraculous favor he had on Jordan's life and still has. We will never forget the MIRACLE that was given to us!

Thank you all for your continued support and prayers. May you all have a wonderful Thanksgiving.

Jordan received chemo this past Wednesday, it consisted of a spinal tap and when they are in there pulling the fluid from the spine, they also inject some chemo medicine. Once he came out of the anesthesia, we went back to the room where he received two more chemo medicines. After an eight hour day, the last thing was to change his pic line dressing and like always they don't like the rash they see, so once again we are changing how we apply the bandages and now switching to iodine to clean it and have to now change the dressing every other day rather than once a week. It seems to be helping, his rash is much better.

Unfortunately the throwing up started that evening while we were at home. The nurses always give him dose of zolfran before we leave for the nauseousness but it only lasts so long. When Jordan is sick like this Shawn and I take turns sleeping on the couch with him and pretty much stay up the entire night. We do find it frustrating though, because its very hard for Jordan to keep any of his meds down when he just vomits them right back up. We wish we could take the medicines home with us and give them to him in the pic line like the nurses do. It would make things so much easier! We also give Jordan ativan and benadryl when he is so sick and vomiting, this is recommended by the doctors, to relax him and make him sleep. When he can keep these all down, it does seem to take the edge off.

This time around, Jordan did not throw up as long but seemed to stay sick longer with laying around a lot and sleeping more. He finally started to feel better on Sunday. We are due back again this Wednesday for more. Thankfully, no spinal tap, he will get two chemo meds at the doctors office. The next treatment after that will be the following Wednesday which will be the day before Thanksgiving...yes, we are all bummed!

For Jordan's Cause, we will be having a garage sale at my sister and brother-in-law's house this Friday, Saturday and Sunday. Their address is 35275 Wildwood Canyon Drive in Yucaipa. The nearest cross street is Bryant. All you garage sale shoppers...come on out!

Lastly...When Jordan was sick on Saturday with no life in him and feeling his weakest, I found the perfect bible verse, 2 Corinthians 12:9 and it talks about God's power working the best in our times of weakness. When I read this to Jordan, it brought tears to both of us, that verse was exactly the verse we needed to get us through that day. I'm so glad I found that seed to plant in Jordan's mind and heart, it helped reassure us we are not facing this battle alone...even in our times of weakness.

A Glimpse Of The Old Jordan

This past weekend, we were able to enjoy Jordan the most we have in a long time. The four of us were able to get away and stay at a campground with two other families in Temecula for Tristen's baseball tournament and yes...he was the bat boy. If it puts him on a baseball field, he'll do it. Jordan is as eager as ever to be playing ball again and being the bat boy just draws him closer to the field.

The break that Jordan has had from chemo has done wonders for him! His hair is growing back, his voice is coming back, his strength is coming back, his personality is coming back, and he's eating more than ever! For the first time, I'm finally seeing it...a glimpse of the old Jordan! I've been eagerly waiting for it and it brings so much relief to see that it can and will happen...I can't wait until he's back, fully restored and even better than ever!

We do however, start up an intensive phase this Wednesday for 62 days. It, like always, begins with being admitted to the hospital for a spinal tap along with other chemos. The doctors feel this phase (hopefully) can be done without any hospital stays overnight. This is a big deal to Jordan and us, considering we've had our fair share of staying in the hospital...we strongly hope those days are behind us.

Jordan has loved this time off as he has been able to be somewhat of a normal kid again. He was able to ride his scooter and actually play ball this weekend with his brother and buddies he camped out with. His Grandpa Henry and Grandma Tina were even able to come and stay one night with us.

On Sunday night we picked up the bike he won from his school, thanks to Mrs. Matlock, and on Monday he was getting back into his old groove of riding and jumping his ramps (taking it cautiously of course). He loves his new bike and it will be great for strengthening his leg muscles.

Jordan currently weighs 60lbs! This is the most since he left the hospital after his initial stay in July. We hope and pray this next phase will not set him back much. He is very much aware of the upcoming chemo and just goes along with it. I've got to hand it to him, he's a trooper all right. Whenever people ask him, "How are you doing?" he always responds with "Good" or he gives a "thumbs up". He never really lets on that this is hard for him. When he does have his bad days, we just reassure him this will all be over soon and life will get back to normal. He feels like sometimes it won't, because in his mind three years of maintenance therapy seems forever. We just keep comforting and reassuring him.

Jordan would like to say, "Thanks to all who keep reading his blog and thank you for everything that you've done for me."

In closing, please remember us in your prayers, as we really don't know what the next couple of months will bring. We've just got to get Jordan through these last stages of the heavy chemo.

A Welcomed Break

This past week we have had a nice, well welcomed break from chemo. Jordan only had chemo on Monday and Tuesdays chemo was canceled due to a reaction he had from the injections in his thighs. I am proud to say this phase is finished.

We have an appointment to meet with doctors this Thursdays to discuss this last phase of Jordan's aggressive chemo therapy treatment. Praise God!! I never thought I'd see these final days approaching, although I do believe this final phase will last all through the holidays.

Jordan is doing pretty well right now, with the exception of his low white blood count. His coloring looks pretty good and his spirits are great. He has been able to do things that keeps him busy and entertained. When he is felling well, it brings much relief to all of us, having days of somewhat normalcy reminds us of what living like a normal family is like once again.

I want to say thank to all the continued prayers that go out for Jordan. I have people telling me continuously they're still praying...it's good to know Jordan has not been forgotten as we still are in a fight. These prayers have lifted us up during days when we as a family have been at our lowest.

Once I get more details regarding this phase on how the doctors are going to approach this...I will defiantly let you all know.

God Bless

Jordan - Bat Boy!

This weekend was much more enjoyable than last weekend for the Macias Family! Since last weekend's chemo treatments, Jordan has finally recovered, making it a weekend full of baseball.

Jordan was the bat boy for his brother, Tristen's traveling baseball team on both Saturday and Sunday. The minute I saw him pick up the first bat and jog out on the field, I must say...brought tears of much satisfaction and joy. It made me remember when we first brought him home from the hospital, he could barely walk, let alone jog. Jordan being out on the field and being apart of the team (even in their huddles) made me realize that ALL things are possible.

When Jordan is feeling well from the side effects of chemo, he gets stronger and stronger in all areas. He is more than ready now to be back on the baseball field playing once again. Soon this phase will end for this particular treatment, than we only have one more aggressive phase before he is on the maintenance phase. I can only hope, it won't hit it hard and set him back.

Friday morning, Jordan was one of four 4th graders at his school to win a bike in which Mrs. Matlock entered his name for the entry. He was able to go up in front of the school and see friends, teachers, and parents who may not have seen Jordan in a while. This made Jordan really happy, plus any chance he gets to go to school makes him so excited.

Unfortunately, we are due back Monday and Tuesday for another round of chemo. It is a repeat of what he's been having and thankfully, no spinal tap is due.

Jordan easily gets bored at home not going to school and playing sports, so this weekend was much needed to recharge and reset his mind. If there's, one thing I noticed about him, he's strong and he's a fighter.

He has told me before he is stronger than me which I know has truth to it. The other day, he was messing around on the computer and he just kept on writing over and over again: Jordan is strong, Jordan is strong. He probably wrote it 40 times...we should all take lessons from him. I know I should.

More Chemo

Jordan had more chemo on Friday and Saturday. On Friday, Jordan was admitted into hospital for another spinal tap along with chemo inserted into his spine during this procedure. While he was asleep for the spinal tap they also inserted another pic line in the opposite arm. The surgeon thoughts still remain the same and he feels Jordan is still not ready for the port in his chest yet. Hopefully, when we get to the maintenance phase, possibly around February, we can start this discussion again about the port.

We had to go back to hospital on Saturday for more chemo, this time two more injections in each thigh. Of course, all side effects kicked in by Saturday night and his eating stopped. It's now Monday morning and I can see that Jordan is starting to come around very slowly.

For all you prayer warriors out there - while yes, we need prayers for the leukemia to stay in remission permanently and for weight to come on, we also need Jordan to be protected from the aggressive flu season that is upon us. I am stunned with how many families have been hit so hard with the flu already. Jordan cannot afford to get anything right now, especially with his immune system so suppressed. He needs protection in all areas.

Thank you to all for your continued support and prayers, they are so needed right now. More than you'll ever know.

It's Tough

A lot of people have been asking about Shawn's job and fortunately, he got hired on with the new company. Most importantly, the medical insurance stayed the same and we were able to stay with Kaiser, which was huge because we did not want to switch with Jordan being in the middle of treatments.

People ask me as well, how's Tristen doing ...He has chose to keep his thoughts private from the blog right now, and I told him that's OK. Often I refer to him and his brother as two bookends - they don't work without each other.

Also...many people ask me how I am doing and I respond with my famous words, "I'm hanging in." I think as a mother, it hits you worse. I have good days and bad days, it seems more bad... and to be honest with you, most days I feel like I don't even want to get out of bed and face my day. But thankfully, I have a wonderful support system with great friends and family and a wonderful husband that motivates me and encourages me when I think I can't do it. He is defiantly the back bone of our family.

I don't do a lot of research on leukemia, I simply choose to do my research in the word of God. I lean on the Lord's report and not the report of the doctor's. I can say that when we go in for chemo now, it's a bit easier. I guess you say I've accepted it. But before, at the beginning, it literally made me ill.

When we lost my sister, Tami, to breast cancer, when she only 37, I thought OK...our family has now dealt with the worst thing possible, this has got to be it for us with our heartache. Well, I was wrong, I'm learning that life is not easy...It's full of ups and downs, laughter and tears, joys and heartache, achievements and disappointments. Right now for us, I have to believe this is just a season we are in and life will eventually get back to normal. My niece, Candace, tells me..a new normal now.

I often find myself looking through old pictures of Jordan...the ones with the shaggy hair, ones on vacations, him playing baseball, and ones with no scars on his neck and face from the echmo and ventilator. I don't know if this is good therapy for me or not, I often end up in tears but all I can say is...I keep going. You have to deal with what you've been dealt. I lean on the strength of the Lord and on his mercy and grace he gives everyday.

So, you see my Friends...I'm hanging in. No one said life would be easy. I defiantly look forward to the brighter days ahead, I just wish they were sooner rather than later.

Jordan Tolerating the Chemo

Jordan had chemo on Monday and Tuesday of this week. It is at a lower dose than the last chemo treatment but in all actuality it is supposed to be higher. Jordan has such a sensitivity to all the medicines used for the chemo, that the doctors modify according to the patient and their needs. They really do work to make their patients as comfortable as possible. I must say we have wonderful doctors and nurses that care deeply for Jordan. They love him, they are always humoring him, and want the weight to come on just as much as us. (Not to mention, they counsel me all the time!)

This time around, Jordan has seemed to not throw up as long - I'm sure it's due to the decreased chemo amount. His eating had decreased to nothing but we push the liquids and Popsicles non stop. He did start eating a bit this afternoon which is always a huge relief to us. My goal was not to make another trip to Fontana for the IV fluids and nauseous medicine. The going back and forth can be a bit challenging. His energy is definitely not there, he just lays around a lot and can not have his hour of school or even mess around with this brother. Hopefully tomorrow he'll feel better and his teacher can come and get his mind of the sickness.

Jordan always gets pale and gets the dark circles under his eyes during this time. He didn't see much sun this pass summer so he seems extra pale to me, I'm used to seeing him with that golden sun kissed tone, man...the day I can see that again!

His pic line mysteriously came out on Monday, so after a few x-rays and our second trip to Fontana that day, it was determined to remove it. The doctors will now discuss once again if it may be time to have the port surgically inserted into his chest. This would be better all the way around for him. We need to pray that the mass is small enough to do so, if not they will put another pic line in. His poor arm really needed a break from this, it had a pretty bad rash on it and it is already looking so much better. Maybe this is a blessing in disguise.

He made me happy this evening, while I was making potato cheese soup for dinner, he got up from the couch and asked if he could cut the carrots and potatoes and add to the soup. I thought he must be feeling a little better. You see, he's got a lot of time on his hands and watches a lot of the cooking channel...he thinks he a chef! That's OK, I'll take it! I love every moment I have with him and my family!

Family is so important! Enjoy your family, love on your family and most of all enjoy this upcoming fall season!

A Much Better Week!

Thankfully all is much better in the Macias home! Tristen is feeling well and back to school and Jordan is much much better since the last dose of chemo. No more throwing up and he's EATING!

Unfortunately he's back down to 54 lbs. Last week just really socked it to us. No chemo this week, although we did have to go to the doctors in Fontana twice for lab work and to change the dressing on his pic line. He seems to be having some sensitivity to the dressing, after all, his skin has not had a break from bandages and tape since June... so the nursers are trying some different techniques for some relief.

Jordan had the opportunity to go to an Angels game this week, he totally loved it and they won which makes it even better! Jordan indulged on a hot dog, pizza and tons of sunflower seeds. He had a great time with his Grandpa and Uncle Gary!

We are due for more chemo on Monday and Tuesday. We just try not to think about it until then, but believe me, my prayers have already started. The focus will be to enjoy the weekend only!

Thank you to everyone for your continued support and prayers. In our house, we seem to never get a break from this, it feels like Shawn and I are constantly carrying this burden on our shoulders. We welcome the day when we can look back on this and praise God for carrying us through.

If you find yourself struggling, the only thing I can say is tomorrow is a new day, don't give up, God won't give us anything we can't handle.

Chemo Has Hit Hard

Jordan is not doing so well after his last chemo treatments. He has been sick vomiting and not eating since Tuesday afternoon. We were at the doctor's office yesterday trying to relieve him of these symptoms but it only took the edge off. We were lucky enough to come home in the evening, however he just stayed the same. We will give it some time to see if today will be the turn around day for him, if not the doctor wants to admit us and start the IV fluids and nauseous medicine once again.

They will also start TPN which is basically food that goes through his veins which consists all the nutrients and fat that he needs to carry him through a period of not eating. Regular food going straight to his stomach would naturally be the best. This will all be based on if he can keep down his fluids and food today. So far, having a bit of luck, lets keep our fingers crossed. Jordan does not want to go back in the hospital, but we will if this will get him better sooner.

His brother Tristen has been home sick since Tuesday with the stomach flu and fever. This is want we were afraid of. Needless to say, this had not been a easy week for our family. We have sent Tristen over to his aunt's house to avoid spreading any germs but have let him come home at night keeping him in different rooms from Jordan. It's very hard when you want to nurture your sick child back to health and comfort them, at the same time not trying to spread the germs to the other one battling cancer and being hit with chemo to where his immune system is so low.

Shawn and I are trying to stay strong as we always look back to the miracle that Jordan is here with us now and we are a family of four again. We've been asking ourselves why us...this is not fair that little Jordan has to endure this. It really hit me hard last night when I saw tears rolling out of Jordan's eyes after he had fallen asleep but than I realized there are many people out there battling this sick disease of cancer.

I know it's not fair...you just gotta hang in there, hold on to your faith and know that God is always holding us in the palm of His hand.

After having a week off of chemo, Jordan went in for some more yesterday. It is actually a repeat of what he had a couple weeks ago. It consisted of two yesterday (one that will be at a higher dose than last time) both by a push. In the doctors words, "This is an aggressive disease so we need to treat it aggressively."

Today will be two injections given in each thigh muscle. Thankfully, we did not have to be admitted into the hospital last time we received this. Jordan did get very sick with throwing up and not eating or drinking for a couple of days but we were able to control these symptoms by a doctors visit with IV fluids and nauseous medicine through his pic line. He did get very dehydrated and unfortunately lost a couple of pounds. This may very well happen this time around especially with the increased amount. I have to keep in mind that he is stronger now and can hopefully tolerate more.

Please keep the prayers coming, we are still in a battle everyday. As of today Jordan almost weighs 58 lbs.

**unless otherwise noted, these updates are coming directly from Melissa...

Jordan had chemo on Tuesday and Wednesday of this week. On Tuesday we were in the hospital for another spinal tap along with three different chemo's. Thankfully, he did not get sick initially, so we were able to go home and not stay the night.

On Wednesday, Jordan had another dose of chemo, this time two injections in each thigh. He was such a trooper and didn't even shed a tear. (We had just heard a verse on the radio talking about being brave and having courage, I'd say Jordan definitely had these that day). These types of shots do normally hurt, that is why we have to apply a numbing cream to the area an hour before. On Wednesday evening Jordan started to feel the effects of chemo and began throwing up. It has continued and has not stopped. His appetite is gone and we're lucky if he keeps liquids down. Hopefully tomorrow he will start to feel better or a trip to the doctors office might be inevitable.

Jordan has continued to do his home school program with Mrs. Smith even though he does not feel the greatest. His teacher says she admires him for this. He really is hanging in there despite the way he feels. We are not due back for chemo until Monday the 21st. This will give him just enough time to recover and then they will hit him with some more.

The mass in his chest is still there and is the size of a lemon, so the surgeon feels its best to wait a couple more months to see if the chemo treatments can bring it down more. The surgeon seems pretty optimistic after seeing the initial CT scan when Jordan was first diagnosed, remember it was inside his entire chest cavity. So...the good news is that it is shrinking or it may just be dead cells that need to dissipate over time.

Please continue to pray as we don't need Jordan to stop eating and loose more weight. It's a very trying time for our family and we are so very thankful for the support of the community, family and friends.

God Bless you all in whatever struggle you may be facing. It's nice to know we can always lean on God no matter the circumstance.

Thank you to everyone for your continued support and prayers. They are obviously working because Jordan is doing much better!

We were under the impression that a brand new phase of chemo was to start this week but it should continue next week. This will allow Jordan to have a break and remain feeling well. This is great because this means no chemo this week allowing white blood counts to recover. Jordan welcomes this!!

Today we have an appointment with the surgeon to discuss putting in a port and removing the pic line in his arm. A port is really what was wanted from the beginning but with the mass so big in his chest it was too risky to be put under for surgery. Now that the mass appears to be smaller they are hoping that next week when he is put under anesthesia for a spinal tap, they can also surgically input the port and remove the pic line. A port is used for administering all of Jordan's chemo treatments and blood work. It is under the skin on the chest so this means shower's will be easier and he can swim. The main thing is there is less room for infection with the port and will be much easier to take care of. Whether or not Jordan is not ready for this surgery, chemo will start up again next week - continuing for 41 days with this particular phase. Prayers are very much needed to get him through this time, as you all know chemo is very hard on his little body.

Last week we had the opportunity to go to Big Bear for four days. Jordan held up pretty well. It was beautiful up there and we were able to go on the boat and enjoy the lake. We fished, ate, relaxed and just enjoyed the breath of fresh air that we all needed so badly. Jordan's cousin, Candace came up for one night. She really is the medicine that Jordan needs. He has become so close to her during this time and she can make him feel better and put a smile on his face no matter how sick or sad he may be feeling that day. Thank you Candace (Wally) for being there for your little cousin!!Legoland...a few weeks ago!

More updates to follow...

This update comes from Melissa:

Jordan had chemo yesterday, it was a light dose so it should not effect the way he feels to much. His voice is getting stronger, but he still sounds horse and talks at a whisper level. Hopefully in a couple more months his voice should resume back to normal. This is common because he had the ventilator in for so long, not to mention the NG feeding tube - which by the way has been removed for the time being because it was clogged. Hopefully it will not have to be inserted again if Jordan continues to eat and gain weight. Jordan has gained four pounds since being home for the hospital which puts him now and 54 lbs. We'll take what we can get!

Legoland was a huge success! Jordan did great the whole day and used his wheelchair. The smile that I saw on Jordan's face will never go unnoticed again. That day is a day we will never forget. There are things in life that we look at differently now. I know life is way too precious to take it for granted. I counted my blessings through out the entire day, thanking God for the second chance at life he has given Jordan. I caught myself just staring at Jordan often, thinking what a miracle he is.

This whole experience makes us put a lot into perspective now...life is too precious, you never know what tomorrow will bring. So give those extra hugs and kisses to your kids, you can never give them enough or too many!

A Message from Melissa

After talking with family and friends lately, we've realized that people are under the assumption that Jordan is doing much better. While all the chemo treatments Jordan has received thus-far are working and putting the leukemia into remission, we are still facing another serious battle. That battle is his weight.

When Jordan was at Loma Linda, their focus was saving his life in which they succeeded. However, during that time he lost an extreme amount of weight. Weight that is usually lost during aggressive chemo treatments. Jordan does not have any type of reserve at this point not to mention muscle mass. That is why Jordan ended up in the hospital for a week recently because chemo knocked him over the edge and his body could not handle it. The doctors are referring to Jordan as being in a worst state than an anorexic. His body is so malnourished and depleted that any infection to his body or virus could result in the worst possible outcome regardless of the leukemia. So the doctors goal at this time is for Jordan to eat, eat, eat and gain as much weight as possible. The family is trying to remain optimistic at this time and trusting God has a plan. After all, his life was already spared and they are not giving up at this point. So please continue to keep little Jordan in your prayers while believing that the weight will come on quickly and stay on him.

On a much lighter note, today Jordan had a light dose of chemo by a quick push that should not make him feel sick to his stomach or knock him down too much. He will have the rest of the week off and return next Tuesday for the same dose. His doctor, Dr. Horvath was so excited to see a smile on his face today that she immediately was on the phone making arrangements for Jordan to receive Lego Land tickets. The doctor says at this time his counts are high enough to enjoy a day at a theme park (cautiously). Doctors orders! It's all about yielding to Jordan and putting a smile back on his face. According to the doctor, "Everything has been stripped away from his nine year old life. Baseball, school, swimming, summer vacations, friends etc..." So, the next two weeks should be very good for Jordan.

He started his 4th grade home school program this week. One hour of school will count as one school day for him. (One good thing out of this, right!) Jordan has the privilege to be home schooled by his 2nd grade teacher, Patti Smith, who by the way is wonderful with him. We thank you ahead time Patti for this, one less stress off of the family!

The family would also like to send out some "Thank You's":

Thank you to Courtney Taylor and Yucaipa Little Theater plus their cast and crew that came out on a special night to perform the play "Oliver" and raise funds for Jordan Cause! The family was touched that the YLT pulled together with such a large cast and crew and gave all proceeds to Jordan.

Also...thank you to Ann and Eric, owners of Reps4Life. On the One Year Anniversary of their fitness gym in Yucaipa they donated to us as well. The Independent All Stars Cheerleading Team was out washing cars all day for Jordan's Cause...Thank you to all! The community has been wonderful and so supportive!

Jordan came home from the hospital yesterday! He ended up staying in all of last week. He just finished a really rough week of chemo. The doctors had him on all sorts of medications to help him with sickness. They even flew some in from back east!

Jordan really turned around on Sunday...he started feeling better and eating a little more, however, he needed another spinal on Tuesday, so instead of going home and having to be readmitted, the doctors kept him. He is very happy to be home, to say the least!

He will be going in for chemo every day this week.

Thank you for your continued prayers for he and his family!!!

Last week at the Son Rock Kids Camp, the YCC Vacation Bible School, Jordan was the focus of attention! The camp raised money for Jordan's Cause. Along with those amazing efforts, the children attending were introduced to Leukemia and what it is. Candace and Jamie were able to go speak to them and tell them Jordan's story. The kids made signs and get well cards for Jordan. Friday night was the end of the week family night celebration. Shawn and Melissa were able to attend, as was Jordan! The family was so touched by the generosity of everyone involved! A huge Thank You to the Son Rock Kids Camp from the Macias Family!

The last few weeks Jordan's counts have been up so he has been able to get out a little more. He was able to go out to dinner and to attend the circus among other things! He is now repeating the same chemo cycle he had last month. He had a heavy dose of chemo on Tuesday. It made him so sick that he was admitted back into the hospital on Wednesday. They have him on meds for his nauseousness. They are also hydrating him. His chemo included a spinal, and chemo in pill form. Today he will be getting more chemo and a blood transfusion. He will be going home as soon as he is feeling better. The next two weeks will be very rough on Jordan, so please continue to keep him in your thoughts and prayers!

Quick Reminder...Oliver this Thursday!

The cast of Yucaipa Little Theatre’s “Oliver!” has scheduled an additional benefit performance for Thursday, August 6, 7:30 p.m., with all proceeds going to help Jordan Macias!To attend this special performance, please call 909-790-1884 for a reservation as the theatre has limited capacity seating. Tickets are $10 for adults and $8 for senior, students, and children. Family tickets are $25, and groups of eight or more may purchase tickets for $6 each.If you cannot attend the August 6th benefit performance, “Oliver!” is playing at 7:30 p.m. on July 31 and August 1, 7 and 8. Matinee performances are at 3:30 p.m. on July 26, and August 2 and 9. A donation jar will be available for Jordan’s Cause.

Jordan had a small dose of chemo today...it wasn't too harsh. His blood counts are good. He'll get a spinal tap and higher doses next week.

Also, a huge thank you goes out to Sherrie Williams, who is with the San Bernardino County Sheriff's Office, for organizing the Tip A Cop at Jose's on Saturday. Shawn and Melissa were actually able to go that night and have dinner! It was the first event for Jordan they have been able to attend! Everyone did an amazing job!

Thank you to everyone who is doing so much for Jordan and his family! Please continue to keep them in your prayers!!

Yucaipa Little Theatre Helps Jordan Macias

The cast of Yucaipa Little Theatre’s “Oliver!” has scheduled an additional benefit performance for Thursday, August 6, 7:30 p.m., with all proceeds going to help Jordan Macias, a 9 year-old Yucaipa resident recently diagnosed with T-Cell Leukemia.

"We heard about the struggle the Macias family has been through as Jordan fights this battle and wanted to do something to help,” said Ken Corona, President of the Yucaipa Little Theatre Board of Directors. “Everyone in the community has rallied around the family and having this special performance is the best way we can contribute.”

Jordan was diagnosed with the disease on May 27, 2009, and spent six weeks in the hospital as doctors worked to reduce a mass that was pressing on his heart, causing a collapsed lung and putting Jordan into cardiac arrest.

He was recently released and is facing three and a half years of intense chemotherapy. His family is staying with relatives while his home is being retrofitted in order to create a safe environment in which to recover. All material for this remodel has been donated by area businesses and the labor has been provided by volunteers.

His mother, Melissa, quit her job to care for Jordan full-time and his father, Shawn, is facing an uncertain future as the troubled economy takes its toll on the auto industry, his line of work for nearly two decades. Tristan, Jordan’s 11 year-old brother, has stayed by his brother’s side since his return home.

“Other fund raising events have been held by local businesses to benefit the family and we’re proud that we can do something to contribute,” said Corona. “Someone in the community remarked that Jordan is a little boy who turned a community into a family. We’re honored to be a member of that family.”

To attend this special performance, please call 909-790-1884 for a reservation as the theatre has limited capacity seating. Tickets are $10 for adults and $8 for senior, students, and children. Family tickets are $25, and groups of eight or more may purchase tickets for $6 each.

If you cannot attend the August 6th benefit performance, “Oliver!” is playing at 7:30 p.m. on July 31 and August 1, 7 and 8. Matinee performances are at 3:30 p.m. on July 26, and August 2 and 9. A donation jar will be available for Jordan’s Cause.

Jordan has had a busy week! On Monday he went in for chemo. When he arrived, he had a 100.3 fever and was immediately admitted to the hospital. They held off on the chemo treatment and evaluated him for the rest of the day. They finally decided that the fever was caused by the heat outside and his walk into the hospital, and he was able to go home.

On Tuesday he went in for the chemo treatment he was supposed to have Monday. It was supposed to be administered in the Peds ICU Unit, however, there weren't any beds for him, so he was taken to the Peds part of the hospital with an ICU doctor to administer the chemo. The type of chemo he was getting does have the possibility of a reaction occurring. Usually this type is given in the thigh, however, since Jordan doesn't have any muscles in his thighs, he was given it by IV. It went directly into his blood stream and he had a reaction. He was treated for it and had to stay in the hospital over night for observation.

Wednesday he had a rehabilitation session scheduled at the hospital for his physical therapy. It was for nerves and muscles, among other things.

Reps For Life 1 Year Anniversary - Festivities to Help Jordan's Cause!

Reps for Life will be having their 1 year Anniversary on Saturday, August 1st. They will be having a car wash from 11 a.m. to 3 p.m., a 50/50, music at 6 p.m. and a percentage of all new membership sales from that day will go to Jordan's Cause!

Every Thursday evening at 6:30 p.m. they will also be having a Christian Rock Band playing music on the patio outside of the gym. All donations will go to Jordan's Cause!

Softball Tournament A Huge Success!

The first annual softball tournament turned out to be a huge success! What a great way to support and raise money for Jordan’s Cause! Despite smoldering temperatures, supporters showed their determination for Jordan that lasted from early morning hours until late evening.

The family would like express their deepest appreciation to the following for making this day possible: Lucy’s Restaurant, Toyota of Redlands, Regalado Family, The Big Cheese, The Olive Garden, Color Trenz, Rueben’s Promos, East Highlands Softball Club, Yucaipa Valley Water District, Rival Skate Shop, KCAL/CBS News, Yucaipa Calimesa News Mirror, Press Enterprise, Shell, Carl’s Jr., and to Eric (ICEMAN) for their donations. Also, thank you to the entire Macias/Guzman family, Caroline & Ben Humildad & family, the McGregor family, D.J. Rich & Denise, Ruben Reese, Frank Chavez, Jason Macias, Mike McCue and to all of their many friends and family that participated in such a group effort. Also, to all the softball teams who participated & to the winners of the tournament, team Ignite!

The family would like to say a special thank you to: Vince Delgado Jr., Andre & Monica Guzman, Uncle Ricky Macias, Ian McGregor and Shawn’s mom, Estella who played vital parts in coordinating this event.

Last but not least, Shawn would like to thank his little sister, Ann Marie Macias for all her time, effort and hard work in planning such a wonderful event. Her only goal was to raise money for the family but most importantly for her little “Jordie” that she loves so much. After all she was the one who nicknamed him “Jordie”. Ann Marie has blessed us not only financially but has been there for us through this tough time. Shawn says, “He’s so lucky and thankful for his little sister”.

May God Bless You All. Please continue to pray for Jordan as he has a long fight ahead of him.

Jordan's Story on the News!

If you missed it, Jordan's Story might be reaired tomorrow morning on CBS 2 news between 5 and 7 a.m. Here is the link to the story on the CBS2/KCAL9 website!

http://cbs2.com/tv/softball.tournament.Leukemia.2.1088578.html

One Amazing Brother

As you all know, Jordan is home now and is doing his treatment on an out-patient basis. What we all don't see, is what this means to his big brother Tristen. There are no words to describe how quickly Tristen has had to grow up through out this whole experience. He has had to watch his little brother and his very best friend in the entire world literally fight to live. The hardest part of all, he has had to watch this from afar...as he wasn't able to be with Jordan for most of the 6 weeks he was in the hospital.

Since Jordan has been home, Tristen has taken it upon himself to be at his side every second possible. He is the one sitting next to him during is treatments now. He is the one rubbing his back, holding his hand, and giving him the encouragement he needs. He can't leave the room, let alone the house, without making sure Jordan is ok. He has stepped up like not many boys his age would, and all because of how much he loves his little brother.

He was there today when Jordan started his next dose of chemo. He is there as he watches Jordan struggle to walk without his walker, and all the time he is encouraging him and helping him fight this amazing battle that the doctors still can't believe he is winning so convincingly!

So, while we all have Jordan in our hearts and in our prayers, let's not forget about is big brother Tristen, who needs just as much attention, words of encouragement, and words of praise...for he too is fighting this battle, just in a much different way!

Tristen, you are one amazing big brother...and Jordan is so blessed to have you!

First Big Outing!

Tonight Jordan had his first big outing since being out of the hospital...and OF COURSE...it was to Tristen's All-Star Game! As Melissa put it, "he demanded and insisted that he was going!" He loved every second of it! The team even did a cheer for him! Unfortunately, the team lost by a run, but Jordan got to see his big brother play ball again and that was all that mattered!

He starts a new week of chemo tomorrow...so please keep him in your prayers!

Blood Drive

Today between 11:30 and 4:30 the Blood Bank will be at the Calimesa Stater Bros. The church Jordan and his family belong to is Oak Valley Family Church. They have an account with the Blood Bank. If you would like to donate, you can request that your blood be credited to the church's account. That way if Jordan ever in need it will be available to him.

Thank you for your support!

He's Out!!!

Jordan came home from the hospital yesterday!

After being there for 6 weeks and 1 day, Shawn brought Jordan home yesterday afternoon! He was greeted by family, balloons, and welcome home signs! Tristen is so excited to have him home!

The doctors can't believe how well Jordan is doing, and in such a short period of time! They have told Melissa and Shawn that he is the exception to what they usually see and expect! They have never seen a kid come back from as much emotionally and physically as Jordan has in such a short period of time! THANK YOU FOR YOUR PRAYERS!

Believe it or not, the doctors have told Shawn and Melissa that Jordan's Leukemia is in remission! While he still has the mass in his chest, they believe that it is of dead cells, not live ones. The continued chemo is to make sure of that. He is responding very well to treatment! The area of concern aside from the mass is his nutrition. He will be having home care and therapy, both physical and occupational. He is having to learn how to walk again. He is currently using a walker and a wheelchair, but he is working very hard. They have him on a high calorie/high protein diet. He is still on an NG tube through his nose, to give him bolus feedings. They are trying to increase them to help with his nutrition. He is still a little sick, but is hanging in there. The best feeding tube for him is a G-Tube, however, it would require surgery to insert it into his chest. The doctors can't risk putting him under anesthetic with the mass still in his chest.

Jordan is doing his chemo on an outpatient basis in Fontana. He went today for another dose, however, they don't do them over the weekend, so his next dose won't be until Monday. On his way home, they stopped at Mimi's. Jordan had a few bites of a BLT and a few fries! Shawn and Melissa kept asking him what he wanted to eat for his first meal home. He said Sushi...so they had Sushi on hand yesterday when he got home! He took a few bites here and there!

Even though Jordan's white blood cell count isn't too low right now, the doctors and family are asking that only immediate family be around him for the time being. The risk of germs is just too great. Jordan has come so far, but still has a long road ahead of him.

Thank you so much for your prayers on his behalf! Please keep them coming!!!

Jordan had a good day today. He is eating a little bit more and is feeling better. He was able to walk around today with the help of a walker! His spirits are up and his physical therapy is going well. He has another dose of chemo tomorrow, as well as a spinal tap.

Last night Jordan had a dose of chemo. He also received a blood transfusion, which they were hoping would give him more energy. He also was able to eat a little bit. Tristen was able to come for a visit, and Jordan enjoyed wearing his All-Stars cap for a while!

Today Jordan was able to walk 400 ft. on his own! He is getting stronger when he's not on heavy chemo. He only has one dose of it tonight, by pill.

Thank you for all of your prayers, please keep them coming!

Correction

I have a correction to last nights post...the fireworks show that was recorded for Jordan to watch was from Redlands, but only bits and pieces of a show from 4 years ago. The show in it's entirety has never been recorded by Melissa's sister-in-law. Sorry about the incorrect information.

Jordan still isn't feeling very well thanks to all of the chemo treatments he is getting. He is very tired, not talking much, and is sick. He has no appetite, and is mainly just drinking fluids. He has two more doses of chemo tonight, one in pill form and the other a push through his IV.

Melissa's brother and is family came down from Bakersfield to spend the holiday with Jordan and Melissa in the hospital. Jordan and Tristen are very close to their cousins. They brought their laptop which had videos the kids have made over the years of themselves to watch with Jordan. Every year Melissa's sister-in-law records the fireworks show at the U of R, so she put them all together so that Jordan could see a fireworks show tonight!

First of all...Happy Birthday Tristen!!! Melissa and Shawn were both able to spend the day with him! This is the first day they have all spent together outside of the hospital since Jordan was admitted. Thank you to Wally for staying with Jordan!

Jordan had a rough day today. Yesterdays round of chemo made him very sick. He was nauseous most of the day, and they had to stop his feedings several times. He had no appetite and was back on the feeding tube. He also had a lot of Gatorade and ice chips. They had him on numerous medications for his nausea as well. He was really tired and didn't do any physical therapy today.

He had two more doses of chemo tonight, but they weren't as strong as the ones he had yesterday. Thank you for keeping him in your prayers, as each day brings something new.

Jordan started his second round of chemo today. This one includes one spinal tap a week, and then chemo in different forms, and in different intervals. For instance, today he took his chemo in pill form and by IV...one that was a push and the other that was given to him over an hour time span. The doctors smashed his pill today and put it through his feeding tube, however, with how well he is able to eat more solid foods, they are thinking he will be able to swallow the pills in no time.

The spinal tap today was very scary for Jordan. He has had 3 others, but today was the first time he was alert with no type of sedation. He did great and it went well. Jordan is on round the clock medication for nausea, however, it is yet to be seen how he will react to this round of chemo.

This round of chemo will last for the next month, and then it will start all over again. The good thing about it is that it can be given to him as an out-patient. He is still in the hospital because of how sick he was to begin with. They haven't given any specifics as to when he will be going home, but at least it is a possibility! He is being moved to another hospital soon, the day is yet to be determined.

For those of you who have been asking, the Stater Bros in Calimesa will be holding a Blood Drive on July 10th to benefit Jordan's Cause. More details will follow soon!

Exciting News!!!

Jordan can now eat real food! His first meal in five weeks was tuna, tomatoes with ranch, a roll with butter, and milk to wash it down! Wally was bringing him a chicken teriyaki bowl from Jack in the Box, at his request. He said "it's gonna be good!"

He is now able to walk around a little. He's taking baby steps to use the bathroom. He was able to take a shower yesterday. While in the bathroom washing his hands today he looked in the mirror and said "it's gettin' bald" of course meaning his hair. He's alright with it though.

He will have chemo and a bone marrow test tomorrow. No g-tube. They don't want to risk a collapsed lung while inserting the tube, so they decided against it for now (the mass is still putting pressure on his lung). The CT results still show the mass, obviously. They are looking to move him again soon, and are still looking for a good rehab center close by.

The past two days have been busy. Jordan's bone marrow test came back good. The doctors would like to get a CT done to check the mass in his chest and and EKG to check on his heart, over the next few days. His next stage of chemo starts Thursday. It will last for the next two months. He will also have a weekly bone marrow test with this round of chemo. He will be getting a G-Tube inserted on Thursday as well. It is a feeding tube in his stomach, as opposed to the one he has in his nose right now. Jordan has started "talking" more. He doesn't have use of his vocal chords yet, but he can whisper pretty loudly and can be heard over the phone. Today he even did some arts and crafts.

Yesterday he was able to ride in a wheelchair to physical therapy. This is the first time in 5 weeks he has been out of his room, and the first opportunity he has had to see where he is. He is on the Peds floor now, so he has an ankle bracelet for security. He did really well at physical therapy, but was too tired to finish, so with about 15 minutes left, his therapist said he could be taken down to the lobby, just to see some of his surroundings. When they got into the elevator, the doors wouldn't close. Before they knew it, alarms were sounding and security guards were all over the place...Jordan's bracelet had gone off! (At least now we know those things really work!) After security interviewed EVERYONE, Jordan was back in his room undisturbed! Quite the excitement!

Once Jordan is home, he will need to go to a rehabilitation center to continue his physical therapy, so they are looking for one that is close!

Today Jordan saw his physical therapist. The session went "excellent"! He still can't use his voice, and can't eat or drink. He will be meeting with a speech therapist and a neurologist tomorrow. The results from his bone marrow test will also be back tomorrow.

Jordan had a rough day today. He has been throwing up a lot and has not been feeling well at all. They stopped his feeds for 3 hours to give him a break. They took a stomach x-ray to make sure everything is ok.

Last night Jordan was moved to a regular Peds room! Thank you for all the prayers...please keep them coming!

Jordan had chemo today. He is making progress each day. He's been sitting up for longer amounts of time by himself, among other things. There is a possibility that he will get to go home sooner than originally thought, but no promises. Please keep the prayers coming!

Jordan was able to have 1 1/2 Popsicles today! His aunt also trimmed up his hair. Tomorrow he will have a spinal injection of chemo and a bone marrow test.

Jordan was able to swallow 2 ice chips today. He is alert and watching TV. He is also working with a physical therapist on his vocal chords. They are encouraging him to use them through games. He has his next round of chemo on Thursday. They are doing a boost of chemo through a spinal tap, then they will do a bone marrow test. Jordan is still in a Peds ICU room. It is all decorated with baseball banners, pictures, and cards. Thank you for all of your prayers on his behalf. Please keep them coming!

Also, "The Green Frog Lounge will be hosting a 50/50 drawing at the end of June located at 27212 Baseline Ave, Highland. All proceeds will go to The Macias Family for Jordan's Cause."

Jordan is making slow and steady progress. Today he sat up in a chair for 6 minutes. His physical therapist wants to see him sitting in a chair by himself for 20 minutes, twice a day. His progress will be determined by how hard he wants to work. He has good and bad days. He is starting to get frustrated because he wants to go home. He still isn't eating or drinking. Hopefully that will come soon.

On a side note, Salon Tranquility in Calimesa is supporting Jordan's Cause! They have green hair extensions, one of the Leukemia Awareness colors, available. All proceeds go to the Macias Family. They are also raffling off an amazing Spa Package! For more information, contact them at 909-795-6005.

We got an update from Melissa tonight...this is all coming from her!

Tristen had his second visit in 4 weeks with Jordan today. They have never been apart for this long, so you can imagine how emotional these visits are, and how hard this is on both of the boys.

Another x-ray was done of the mass in Jordan's chest. It is still compressing on his left lung. This is one of the reasons Jordan is still in the Peds ICU. They are hoping he will be moved out of there in the near future.

Jordan is awake and functioning. He has been reading his many cards and get well wishes. He read one today from the kids at Calvery Chapel in Prescott, Arizona! He has also been playing his Game Boy! He is very hungry and thirsty all the time. This makes him pretty feisty!

Melissa also wanted to thank Candace, aka Wally, for dropping everything and spending the past 3 days with she and Jordan at the hospital. This move has been hard on everyone, and she couldn't have done it without her!

A great picture of Jordan was sent out by text today...he was awake, wearing his Dodgers baseball hat, and his HUGE ear to ear smile! Our prayers are working! Thank you and please keep them coming! Hopefully we'll have some pictures for the blog soon!

Here are the Minor Dodgers receiving their First Place Medals at closing ceremonies yesterday!

Jordan is at the new hospital and is doing ok. He is aware of what is going on, and is more alert with each day. He has been given swallow tests, however, hasn't passed any yet. Along with his chemo and treatment plan for his leukemia, he is also going to be starting some physical therapy to help him speak and swallow.

Jordan was moved to a Kaiser Hospital tonight. He and Melissa went by helicopter.

Congratulations to the Minor League Dodgers!!! Jordan, Tristen, and Shawn's team won the tournament tonight! They defeated the Reds 15-8! Tomorrow is closing ceremonies at 10 a.m. at Bryant Glenn. The National League will have "Leukemia Awareness" Orange Rubber Bracelet Wristbands available. They have been personalized with Jordan's name on them...very cool!

The doctors decided that Jordan wasn't ready to move yet, so he is still at Loma Linda for the time being! He had a busy day today...chemo, a CT, a chest x-ray to check on the mass, and a swallow test. He still can't talk, but is communicating better.

Jordan will be moving from Loma Linda to Kaiser within the next day. He is still scheduled for a treatment of chemo tomorrow. He is looking much better and is more alert today. He even watched a little T.V. He can't talk yet, but does mouth words and whisper.

Not much has changed since yesterday...Jordan is still off the ventilator and is doing ok! The doctors are increasing his calorie intake...hopefully he will start to gain back some of the weight he has lost. He is starting to lose his hair from all the chemo, but at least it seems to be working, the mass is starting to get a little smaller. His next round of chemo is Thursday.

The doctors have decided to put a hold on the biopsy of the mass. They are going to stick to their original treatment plan. Jordan needs to get stronger, so they are starting to feed him more through his IV, as mentioned earlier, he has lost quite a bit of weight since he was admitted to the hospital. He is still off the ventilator, but the past two days have been a little rough. The mass is still putting pressure on his left lung so it isn't able to expand like it should.

Shawn, Jordan, and Tristen's team, the Minor Dodgers, won their second round tournament game tonight and will be playing in the championship game!

ALSO, A HUGE CONGRATULATIONS TO TRISTEN FOR MAKING ALL-STARS!!!!

Jordan was taken off the ventilator around 2:30 this morning! Doctors haven't said if it for good or not, but he is off of it as of right now. They are planning on doing a biopsy of the mass tomorrow. There is a chance he might have to do some radiation, but that is still uncertain.

As you can imagine, this is a very difficult and frustrating time, as there are still so many unknowns. Please keep your prayers on behalf of Jordan, Tristen, Shawn, and Melissa coming. We know that God hears and answers our prayers! Please pray specifically for Jordan's progress and for inspiration for his doctors that they might know what direction to go as far as his treatment is concerned. Thank you so much for your support!

First of all, thank you to everyone who participated in the Cut-A-Thon today! Don't forget, if you eat at The Fat Greek and mention Jordan's Cause, they will donate 10% of your bill! Monday is the last day!

Jordan had a pretty rough night last night, which carried over to today. He had an MRI and a CT done today. After the testing was done, his heart rate dropped to 44. It took the doctors awhile to get it back up. Melissa wanted to personally thank everyone from the Oak Valley Family Church for getting together and praying for Jordan today while this was going on. He has lost 7 pounds since he was admitted to the hospital, but he is hanging in there! The doctors hope they will be able to take him off the ventilator in the next few days.

On a baseball note, the Minor League Tournament started today. Shawn managed his team as Tristen and the rest of the Dodgers came away with a victory!

Not much news to report today. They are still waiting for the results from the MRI. Thank you for all of your prayers on behalf of Jordan and his family! They are greatly appreciated! Please keep them coming!

A quick reminder...Color Trenz in Yucaipa will be holding a Cut-A-Thon on Saturday, June 13th! It is located at 31608 Yucaipa Blvd. All proceeds will go the The Macias Family Benevolent Fund! Be sure to stop by!!!

Not much has changed since this morning. Jordan did have some x-rays done of his chest and an MRI today. He had a PIC Line put in...so no more IV's. He also had another round of chemo. His last bone marrow test came back clear, so he isn't in need of any donors at this time, which is a great thing! Since he is back on the ventilator, he is sedated, but not on a continuous drip like before. This time the medication is being given to him manually by the doctors and nurses. His chest is just too weak from the pressure being put on everything by the mass, which is why the decision was made to put him back on the ventilator.

A Small Step Back

The doctors decided to put Jordan back on the ventilator last night, and so once again, he has been sedated. The mass in his chest is still crushing against his left lung, making breathing a little too difficult for him to do on his own. His breathing on his own was labored all day yesterday...as if he'd just run a marathon, and the doctors weren't comfortable with that. Jordan also has chemo today. Please remember to keep him in your prayers!

Cut-A-Thon

Just a reminder...the Cut-A-Thon will be held this Saturday, June 13, 2008 at ColorTrenz in Yucaipa. All Hair cuts are free and donations will go to the Macias Family.

As mentioned last night, Jordan is off all medication and is awake - well, he's still trying to wake up completely. He's been in and out all day. He's still not talking and his left lung still isn't working at 100% due to the mass pushing on it. Please no visitors yet, as he is still adjusting to everything that is going on. Thank you for all of your prayers! Please keep them coming!

More Recent Update...

Sorry...lots of changes today...even though Jordan is awake and off the ventilator, he is on an apnea machine to make sure he is getting enough oxygen. The doctors didn't like the way his breathing was sounding when he was on his own, so they put him on this machine. It has been a very long and tough day for him, as you all can imagine.

THIS JUST IN...

Jordan is awake!!! The ventilator is out! He has a sore throat and can't talk, but everything is looking good at this point! Thank you for your prayers, please keep them coming!

The doctors have taken Jordan off his medication so that he can wake up! He has been moving around, trying to wake up, but he isn't awake yet. As soon as he is awake the doctors can take him off the ventilator! They just need to make sure that he is breathing on his own before they take it out. Hopefully it will be soon!!! Keep the prayers coming!

Keeping Our Fingers Crossed, and the Prayers Coming!

There is a good chance that Jordan will get off the ventilator today and that the doctors will wake him up!

Both chest tubes are out! Hopefully Jordan will be off the ventilator tomorrow!

Jordan had a really good night last night! Today they removed his right chest tube and tomorrow they will be running some tests to see if they can remove the ventilator.

First of all, thank you so much to everyone who participated in our Jose's Nights this past week! The turnout on behalf of Jordan's Cause was enormous!!!

There really isn't any new news on Jordan today. He is still on the ventilator and is heavily medicated. His next round of chemo will most likely be Thursday. Please keep the prayers for he and his family coming!

Don't Forget...

Today is the last Jose's Day for Jordan! Eat at Jose's in Yucaipa! If you need a flyer, send an email to jordanscause@gmail.com. Thank you for your support!!!

Jordan's bone marrow test and spinal tap came back clear! The doctors are very happy about this, however, his white blood cell count is very low. For this reason, Shawn and Melissa are the only ones allowed in Jordan's room at this time. He is resting comfortably tonight.

Quick update...today Jordan had a bone marrow test and a spinal tap...no results yet. He also had another round of chemo.

Thank you to everyone who supported Jordan by eating at Jose's today! If you haven't had a chance to make it over there, our last Jose's day is Saturday!

Jordan is off all of his paralyzing medication. He is sedated and is resting comfortably. The doctors can see his heart better in the x-rays, so that means the mass is shrinking! Please continue to keep him in your prayers, and thank you for all of your support!

Don't Forget...

Quick reminder...Today is one of the Jose's Days for Jordan! Eat at Jose's in Yucaipa! If you need a flyer, send an email to jordanscause@gmail.com. Thank you for your support!!!

It's the end of another day...and Jordan is still the amazing fighter that he is! Unfortunately, the doctors had to put him back on the paralyzing medications today. He is still on the ventilator and his lungs are filling with fluid so he has had some chest tubes put in to help drain them. The good news is that his vitals are all stable. His next round of chemo is scheduled for Thursday.

The Fat Greek Supports Jordan's Cause!

We are excited to announce that The Fat Greek in Yucaipa is supporting Jordan's Cause! From now until June 15th, when you go to The Fat Greek and mention Jordan's Cause, they will donate 10% of your bill to The Macias Family Benevolent Fund!

Thank you Fat Greek and thank you Yucaipa!

Thank you to everyone who went to Jose's today! We heard that it was the biggest fundraiser turn out they could remember! Let's make it even bigger on Wednesday!

Jordan had a long day today. He had a very strong dose of chemo. Unfortunately, he is still on the ventilator. Earlier this evening his vitals weren't where they should be, but the doctors were able to stabilize him. Just a reminder...he is strong and he is a fighter, but he isn't out of the woods yet! Please keep the prayers coming!

Don't Forget...

Quick reminder...Today is one of the Jose's Days for Jordan! Eat at Jose's in Yucaipa! If you need a flyer, send an email to jordanscause@gmail.com. Thank you for your support!!!

A Step in the Right Direction!

Today was a good day! As of noon, Jordan has been off of the ECMO machine and is doing really well. His doctors and nurses are amazed at how well he is doing and that things have progressed in the right direction so quickly. Loma Linda has had an ECMO machine since 1988. Jordan is one of the oldest people to be put on this machine. Due to this fact, he is going to be featured in a research study. We are very blessed that this machine was available to Jordan. If not for this machine, he would not be with us today.

The chemo is working, however the mass is still there. His next round will be tomorrow. Jordan is still on a ventilator. The doctors are hoping to get him off of it tomorrow. He was taken off his blood pressure medication today and is still slowly being taken off the paralyzing medications.

Jordan still has a really long road ahead of him, but as of right now, things are looking good! The power of prayer is amazing! Thank you so much for all of the prayers you have said on his behalf! Please keep them coming!

Great News!!!

Jordan is in the process of being taken off the ECMO machine!!! We don't have any more specifics at this time, but it is faster than anyone expected this to happen! God truly does hear our prayers! Please keep them coming!

Progress!

Today was a day of firsts. Jordan was off of the ECMO for a few minutes and his heart and lungs were able to work on their own! There was a glitch in the machine he was on, so he was put on a new one, the transfer went without a hitch! This evening he was taken off the paralyzing medicine for a bit. Shawn and Melissa held his hand and asked Jordan to squeeze their hands if he knew they were there. He squeezed them and raised his eyebrows! As his medication was wearing off, he had tears running down his cheeks...

As far as the mass in his chest goes, there isn't really a way to know if it is shrinking as of right now because they are unable to take soft tissue X-Rays. When Jordan was first admitted, most of his lungs were not visible with a standard X-Ray. As of the most current standard X-Ray, more of his lungs are now visible.

The Beginning of Jordan's Journey

Jordan, age 9, was diagnosed suddenly with T-Cell Leukemia on Tuesday, May 26, 2009. Currently he has a mass in his chest that has caused one of his lungs to collapse. He has been placed on an ECMO machine to work for his lungs while he is being given large doses of chemotherapy to shrink the mass. While on the ECMO machine, he has been on a paralyzing medication. As of tonight, they are starting to take him off of this medication. The mass is starting to shrink and they are hopeful that they will be able to take him off of the machine within the next few days.

Over the next month, Jordan will be given a very vigorous regimen of chemotherapy. They believe that the mass is only 3 to 4 weeks old, and are hopeful that because of this, they will be able to shrink it quickly. As of right now, he is expected to be in the hospital for the next 2 1/2 months, and then will be on a 3 year treatment plan.

While there is a treatment plan in place and his family is very hopeful, Jordan is still in very critical condition and your prayers on his behalf are greatly appreciated.