Sunday, May 31, 2009

A Step in the Right Direction!

Today was a good day! As of noon, Jordan has been off of the ECMO machine and is doing really well. His doctors and nurses are amazed at how well he is doing and that things have progressed in the right direction so quickly. Loma Linda has had an ECMO machine since 1988. Jordan is one of the oldest people to be put on this machine. Due to this fact, he is going to be featured in a research study. We are very blessed that this machine was available to Jordan. If not for this machine, he would not be with us today.

The chemo is working, however the mass is still there. His next round will be tomorrow. Jordan is still on a ventilator. The doctors are hoping to get him off of it tomorrow. He was taken off his blood pressure medication today and is still slowly being taken off the paralyzing medications.

Jordan still has a really long road ahead of him, but as of right now, things are looking good! The power of prayer is amazing! Thank you so much for all of the prayers you have said on his behalf! Please keep them coming!

Great News!!!

Jordan is in the process of being taken off the ECMO machine!!! We don't have any more specifics at this time, but it is faster than anyone expected this to happen! God truly does hear our prayers! Please keep them coming!

Saturday, May 30, 2009

Progress!

Today was a day of firsts. Jordan was off of the ECMO for a few minutes and his heart and lungs were able to work on their own! There was a glitch in the machine he was on, so he was put on a new one, the transfer went without a hitch! This evening he was taken off the paralyzing medicine for a bit. Shawn and Melissa held his hand and asked Jordan to squeeze their hands if he knew they were there. He squeezed them and raised his eyebrows! As his medication was wearing off, he had tears running down his cheeks...

As far as the mass in his chest goes, there isn't really a way to know if it is shrinking as of right now because they are unable to take soft tissue X-Rays. When Jordan was first admitted, most of his lungs were not visible with a standard X-Ray. As of the most current standard X-Ray, more of his lungs are now visible.

Friday, May 29, 2009

The Beginning of Jordan's Journey


Jordan, age 9, was diagnosed suddenly with T-Cell Leukemia on Tuesday, May 26, 2009. Currently he has a mass in his chest that has caused one of his lungs to collapse. He has been placed on an ECMO machine to work for his lungs while he is being given large doses of chemotherapy to shrink the mass. While on the ECMO machine, he has been on a paralyzing medication. As of tonight, they are starting to take him off of this medication. The mass is starting to shrink and they are hopeful that they will be able to take him off of the machine within the next few days.

Over the next month, Jordan will be given a very vigorous regimen of chemotherapy. They believe that the mass is only 3 to 4 weeks old, and are hopeful that because of this, they will be able to shrink it quickly. As of right now, he is expected to be in the hospital for the next 2 1/2 months, and then will be on a 3 year treatment plan.

While there is a treatment plan in place and his family is very hopeful, Jordan is still in very critical condition and your prayers on his behalf are greatly appreciated.