Wednesday, August 26, 2009

This update comes from Melissa:

Jordan had chemo yesterday, it was a light dose so it should not effect the way he feels to much. His voice is getting stronger, but he still sounds horse and talks at a whisper level. Hopefully in a couple more months his voice should resume back to normal. This is common because he had the ventilator in for so long, not to mention the NG feeding tube - which by the way has been removed for the time being because it was clogged. Hopefully it will not have to be inserted again if Jordan continues to eat and gain weight. Jordan has gained four pounds since being home for the hospital which puts him now and 54 lbs. We'll take what we can get!

Legoland was a huge success! Jordan did great the whole day and used his wheelchair. The smile that I saw on Jordan's face will never go unnoticed again. That day is a day we will never forget. There are things in life that we look at differently now. I know life is way too precious to take it for granted. I counted my blessings through out the entire day, thanking God for the second chance at life he has given Jordan. I caught myself just staring at Jordan often, thinking what a miracle he is.

This whole experience makes us put a lot into perspective now...life is too precious, you never know what tomorrow will bring. So give those extra hugs and kisses to your kids, you can never give them enough or too many!

Wednesday, August 19, 2009

A Message from Melissa

After talking with family and friends lately, we've realized that people are under the assumption that Jordan is doing much better. While all the chemo treatments Jordan has received thus-far are working and putting the leukemia into remission, we are still facing another serious battle. That battle is his weight.

When Jordan was at Loma Linda, their focus was saving his life in which they succeeded. However, during that time he lost an extreme amount of weight. Weight that is usually lost during aggressive chemo treatments. Jordan does not have any type of reserve at this point not to mention muscle mass. That is why Jordan ended up in the hospital for a week recently because chemo knocked him over the edge and his body could not handle it. The doctors are referring to Jordan as being in a worst state than an anorexic. His body is so malnourished and depleted that any infection to his body or virus could result in the worst possible outcome regardless of the leukemia. So the doctors goal at this time is for Jordan to eat, eat, eat and gain as much weight as possible. The family is trying to remain optimistic at this time and trusting God has a plan. After all, his life was already spared and they are not giving up at this point. So please continue to keep little Jordan in your prayers while believing that the weight will come on quickly and stay on him.

On a much lighter note, today Jordan had a light dose of chemo by a quick push that should not make him feel sick to his stomach or knock him down too much. He will have the rest of the week off and return next Tuesday for the same dose. His doctor, Dr. Horvath was so excited to see a smile on his face today that she immediately was on the phone making arrangements for Jordan to receive Lego Land tickets. The doctor says at this time his counts are high enough to enjoy a day at a theme park (cautiously). Doctors orders! It's all about yielding to Jordan and putting a smile back on his face. According to the doctor, "Everything has been stripped away from his nine year old life. Baseball, school, swimming, summer vacations, friends etc..." So, the next two weeks should be very good for Jordan.

He started his 4th grade home school program this week. One hour of school will count as one school day for him. (One good thing out of this, right!) Jordan has the privilege to be home schooled by his 2nd grade teacher, Patti Smith, who by the way is wonderful with him. We thank you ahead time Patti for this, one less stress off of the family!

The family would also like to send out some "Thank You's":

Thank you to Courtney Taylor and Yucaipa Little Theater plus their cast and crew that came out on a special night to perform the play "Oliver" and raise funds for Jordan Cause! The family was touched that the YLT pulled together with such a large cast and crew and gave all proceeds to Jordan.

Also...thank you to Ann and Eric, owners of Reps4Life. On the One Year Anniversary of their fitness gym in Yucaipa they donated to us as well. The Independent All Stars Cheerleading Team was out washing cars all day for Jordan's Cause...Thank you to all! The community has been wonderful and so supportive!

Wednesday, August 12, 2009

Jordan came home from the hospital yesterday! He ended up staying in all of last week. He just finished a really rough week of chemo. The doctors had him on all sorts of medications to help him with sickness. They even flew some in from back east!

Jordan really turned around on Sunday...he started feeling better and eating a little more, however, he needed another spinal on Tuesday, so instead of going home and having to be readmitted, the doctors kept him. He is very happy to be home, to say the least!

He will be going in for chemo every day this week.

Thank you for your continued prayers for he and his family!!!

Thursday, August 6, 2009

Last week at the Son Rock Kids Camp, the YCC Vacation Bible School, Jordan was the focus of attention! The camp raised money for Jordan's Cause. Along with those amazing efforts, the children attending were introduced to Leukemia and what it is. Candace and Jamie were able to go speak to them and tell them Jordan's story. The kids made signs and get well cards for Jordan. Friday night was the end of the week family night celebration. Shawn and Melissa were able to attend, as was Jordan! The family was so touched by the generosity of everyone involved! A huge Thank You to the Son Rock Kids Camp from the Macias Family!

The last few weeks Jordan's counts have been up so he has been able to get out a little more. He was able to go out to dinner and to attend the circus among other things! He is now repeating the same chemo cycle he had last month. He had a heavy dose of chemo on Tuesday. It made him so sick that he was admitted back into the hospital on Wednesday. They have him on meds for his nauseousness. They are also hydrating him. His chemo included a spinal, and chemo in pill form. Today he will be getting more chemo and a blood transfusion. He will be going home as soon as he is feeling better. The next two weeks will be very rough on Jordan, so please continue to keep him in your thoughts and prayers!

Tuesday, August 4, 2009

Quick Reminder...Oliver this Thursday!

The cast of Yucaipa Little Theatre’s “Oliver!” has scheduled an additional benefit performance for Thursday, August 6, 7:30 p.m., with all proceeds going to help Jordan Macias!To attend this special performance, please call 909-790-1884 for a reservation as the theatre has limited capacity seating. Tickets are $10 for adults and $8 for senior, students, and children. Family tickets are $25, and groups of eight or more may purchase tickets for $6 each.If you cannot attend the August 6th benefit performance, “Oliver!” is playing at 7:30 p.m. on July 31 and August 1, 7 and 8. Matinee performances are at 3:30 p.m. on July 26, and August 2 and 9. A donation jar will be available for Jordan’s Cause.