Praising God!

What an answer to prayers! Jordan’s bone marrow test came back negative, no Leukemia cells were found. Thank you all for your continued prayers during this time for us!

Jordan was having similar signs of what could have been a relapse but it appears to of been side effects from his brain radiation. The doctors say this is about the time for him to start having some delayed reactions and the fevers were just leaked to a virus. Thankfully, the fevers stopped this past Tuesday. We have gradually started him back in school but he doesn’t last to long because he is just so weak and sleepy, we have him doing half days. Unfortunately he has lost 5 lbs, bringing him back down to 65 lbs. We encourage food every minute but his stomach has shrunk so much and his appetite is very little. We just have to be patient for that weight to come back on. His is still bald from loosing his hair back in August but you can see his hair starting grow now.

I was happy to hear that they felt it was best to postpone his spinal tap along with his chemo for about another month. They want him to recover from all the side effects of the radiation before they zap him with some more chemo. They might consider doing his monthly chemo next week; they will decide this at his next appointment. In the meantime, his counts are pretty good. His ANC level is around 1000...no where near the average child but acceptable for Jordan at this time.

Again, we are so relieved that his bone marrow is clear…the Leukemia still remains in remission! We rejoiced with tears of joy that day. We are in awe of God’s faithful promises and like my sister reminds me, the Lord will complete the work he has started in Jordan and never doubt the power of prayer!

Thank you Heavenly Father for your Mercy that endures forever!!

“For I know the plans I have for you”, says the Lord. “They are plans for good and not for disaster, to give you a future and a hope”. Jeremiah 29:11

Trying to Remain Positive

Hello Everyone. Just when you think all is well, something pops up to make you worry…

Last Saturday, Jordan started having fevers that we hoped would go away but they didn’t and we ended up in the hospital for 5 days. He had no other symptoms but fevers with chills, being very tired and no appetite at all…it all came on very quickly. They ran all routine blood tests for bacteria and fungal infections and even tried to determine what type of virus it may be. After being on heavy antibiotics, they felt it was safe enough to stop all antibiotics and just let whatever virus he had run its course. Thankfully, they agreed it was safe to come home on Thursday and have allowed us to give Tylenol for the fevers and just push as much food and liquids as possible.

To much of my surprise, they are still going to proceed with his spinal tap and chemo medicines (that he gets every 3 months) this Monday. The doctor says his counts look good and that it would be ok to do so. They are also going to do another bone marrow test the same day just to make sure the bone marrow is still clear. The last time he had his bone marrow checked was about a year ago. His bone marrow has never had any Leukemia cells in it, so our hope and prayers are that it has remained clean and clear of any unwanted Leukemia cells. Unfortunately, when I made a call to the Leukemia/Lymphoma Foundation and actually spoke with a specialist I found out that Jordan has some symptoms of a possible recurrence. This has thrown us in a panic and our hearts and minds are filled with worry and fear that at times are unbearable. We’re trying very hard to remain in tact for Tristen as we don’t want to weigh him down with too much worry for his brother.

Since Jordan has been home, he has been sleeping pretty much non stop, hardly eating and still running low grade fevers. He just looks sick, with droopy eyes and has a pale complexion, with really no life inside of him. Every once in awhile he will wake up to watch some playoff games of baseball and play a round of rummy with one of us.

We are trying to remain positive and put our complete trust in God that this is just a virus and eventually he will be over it, but it’s much easier to say than do. There’s no doubt in my mind that it has been all the prayers that have gotten Jordan this far, especially in the beginning when things seemed so hopeless. Now, we will continue those prayers and keep our hope and faith so that it will carry us through no matter what we find out from Monday’s tests results.

I pray for Gods Mighty Healing Power to work supernaturally in Jordan’s body right now and in this next week to come. I especially pray for peace of mind upon all of us as we wait for test results of the bone marrow. Please stand firm and stay in agreement with us as we continue to fight this battle for our precious son.

Hebrews 4:16 So let us come boldly to the throne of our Gracious God. There we will receive his mercy, and we will find grace to help us when we need it.