After talking with family and friends lately, we've realized that people are under the assumption that Jordan is doing much better. While all the chemo treatments Jordan has received thus-far are working and putting the leukemia into remission, we are still facing another serious battle. That battle is his weight.
When Jordan was at Loma Linda, their focus was saving his life in which they succeeded. However, during that time he lost an extreme amount of weight. Weight that is usually lost during aggressive chemo treatments. Jordan does not have any type of reserve at this point not to mention muscle mass. That is why Jordan ended up in the hospital for a week recently because chemo knocked him over the edge and his body could not handle it. The doctors are referring to Jordan as being in a worst state than an anorexic. His body is so malnourished and depleted that any infection to his body or virus could result in the worst possible outcome regardless of the leukemia. So the doctors goal at this time is for Jordan to eat, eat, eat and gain as much weight as possible. The family is trying to remain optimistic at this time and trusting God has a plan. After all, his life was already spared and they are not giving up at this point. So please continue to keep little Jordan in your prayers while believing that the weight will come on quickly and stay on him.
On a much lighter note, today Jordan had a light dose of chemo by a quick push that should not make him feel sick to his stomach or knock him down too much. He will have the rest of the week off and return next Tuesday for the same dose. His doctor, Dr. Horvath was so excited to see a smile on his face today that she immediately was on the phone making arrangements for Jordan to receive Lego Land tickets. The doctor says at this time his counts are high enough to enjoy a day at a theme park (cautiously). Doctors orders! It's all about yielding to Jordan and putting a smile back on his face. According to the doctor, "Everything has been stripped away from his nine year old life. Baseball, school, swimming, summer vacations, friends etc..." So, the next two weeks should be very good for Jordan.
He started his 4th grade home school program this week. One hour of school will count as one school day for him. (One good thing out of this, right!) Jordan has the privilege to be home schooled by his 2nd grade teacher, Patti Smith, who by the way is wonderful with him. We thank you ahead time Patti for this, one less stress off of the family!
The family would also like to send out some "Thank You's":
Thank you to Courtney Taylor and Yucaipa Little Theater plus their cast and crew that came out on a special night to perform the play "Oliver" and raise funds for Jordan Cause! The family was touched that the YLT pulled together with such a large cast and crew and gave all proceeds to Jordan.
Also...thank you to Ann and Eric, owners of Reps4Life. On the One Year Anniversary of their fitness gym in Yucaipa they donated to us as well. The Independent All Stars Cheerleading Team was out washing cars all day for Jordan's Cause...Thank you to all! The community has been wonderful and so supportive!
Melissa, Thanx for the update how about Shawne's situation at work? We'll continue to pray out here in Kansas.
ReplyDeleteMatt Berg (bergo23@gmail.com)