First Big Outing!

Tonight Jordan had his first big outing since being out of the hospital...and OF COURSE...it was to Tristen's All-Star Game! As Melissa put it, "he demanded and insisted that he was going!" He loved every second of it! The team even did a cheer for him! Unfortunately, the team lost by a run, but Jordan got to see his big brother play ball again and that was all that mattered!

He starts a new week of chemo tomorrow...so please keep him in your prayers!

Blood Drive

Today between 11:30 and 4:30 the Blood Bank will be at the Calimesa Stater Bros. The church Jordan and his family belong to is Oak Valley Family Church. They have an account with the Blood Bank. If you would like to donate, you can request that your blood be credited to the church's account. That way if Jordan ever in need it will be available to him.

Thank you for your support!

He's Out!!!

Jordan came home from the hospital yesterday!

After being there for 6 weeks and 1 day, Shawn brought Jordan home yesterday afternoon! He was greeted by family, balloons, and welcome home signs! Tristen is so excited to have him home!

The doctors can't believe how well Jordan is doing, and in such a short period of time! They have told Melissa and Shawn that he is the exception to what they usually see and expect! They have never seen a kid come back from as much emotionally and physically as Jordan has in such a short period of time! THANK YOU FOR YOUR PRAYERS!

Believe it or not, the doctors have told Shawn and Melissa that Jordan's Leukemia is in remission! While he still has the mass in his chest, they believe that it is of dead cells, not live ones. The continued chemo is to make sure of that. He is responding very well to treatment! The area of concern aside from the mass is his nutrition. He will be having home care and therapy, both physical and occupational. He is having to learn how to walk again. He is currently using a walker and a wheelchair, but he is working very hard. They have him on a high calorie/high protein diet. He is still on an NG tube through his nose, to give him bolus feedings. They are trying to increase them to help with his nutrition. He is still a little sick, but is hanging in there. The best feeding tube for him is a G-Tube, however, it would require surgery to insert it into his chest. The doctors can't risk putting him under anesthetic with the mass still in his chest.

Jordan is doing his chemo on an outpatient basis in Fontana. He went today for another dose, however, they don't do them over the weekend, so his next dose won't be until Monday. On his way home, they stopped at Mimi's. Jordan had a few bites of a BLT and a few fries! Shawn and Melissa kept asking him what he wanted to eat for his first meal home. He said Sushi...so they had Sushi on hand yesterday when he got home! He took a few bites here and there!

Even though Jordan's white blood cell count isn't too low right now, the doctors and family are asking that only immediate family be around him for the time being. The risk of germs is just too great. Jordan has come so far, but still has a long road ahead of him.

Thank you so much for your prayers on his behalf! Please keep them coming!!!

Jordan had a good day today. He is eating a little bit more and is feeling better. He was able to walk around today with the help of a walker! His spirits are up and his physical therapy is going well. He has another dose of chemo tomorrow, as well as a spinal tap.

Last night Jordan had a dose of chemo. He also received a blood transfusion, which they were hoping would give him more energy. He also was able to eat a little bit. Tristen was able to come for a visit, and Jordan enjoyed wearing his All-Stars cap for a while!

Today Jordan was able to walk 400 ft. on his own! He is getting stronger when he's not on heavy chemo. He only has one dose of it tonight, by pill.

Thank you for all of your prayers, please keep them coming!

Correction

I have a correction to last nights post...the fireworks show that was recorded for Jordan to watch was from Redlands, but only bits and pieces of a show from 4 years ago. The show in it's entirety has never been recorded by Melissa's sister-in-law. Sorry about the incorrect information.

Jordan still isn't feeling very well thanks to all of the chemo treatments he is getting. He is very tired, not talking much, and is sick. He has no appetite, and is mainly just drinking fluids. He has two more doses of chemo tonight, one in pill form and the other a push through his IV.

Melissa's brother and is family came down from Bakersfield to spend the holiday with Jordan and Melissa in the hospital. Jordan and Tristen are very close to their cousins. They brought their laptop which had videos the kids have made over the years of themselves to watch with Jordan. Every year Melissa's sister-in-law records the fireworks show at the U of R, so she put them all together so that Jordan could see a fireworks show tonight!

First of all...Happy Birthday Tristen!!! Melissa and Shawn were both able to spend the day with him! This is the first day they have all spent together outside of the hospital since Jordan was admitted. Thank you to Wally for staying with Jordan!

Jordan had a rough day today. Yesterdays round of chemo made him very sick. He was nauseous most of the day, and they had to stop his feedings several times. He had no appetite and was back on the feeding tube. He also had a lot of Gatorade and ice chips. They had him on numerous medications for his nausea as well. He was really tired and didn't do any physical therapy today.

He had two more doses of chemo tonight, but they weren't as strong as the ones he had yesterday. Thank you for keeping him in your prayers, as each day brings something new.

Jordan started his second round of chemo today. This one includes one spinal tap a week, and then chemo in different forms, and in different intervals. For instance, today he took his chemo in pill form and by IV...one that was a push and the other that was given to him over an hour time span. The doctors smashed his pill today and put it through his feeding tube, however, with how well he is able to eat more solid foods, they are thinking he will be able to swallow the pills in no time.

The spinal tap today was very scary for Jordan. He has had 3 others, but today was the first time he was alert with no type of sedation. He did great and it went well. Jordan is on round the clock medication for nausea, however, it is yet to be seen how he will react to this round of chemo.

This round of chemo will last for the next month, and then it will start all over again. The good thing about it is that it can be given to him as an out-patient. He is still in the hospital because of how sick he was to begin with. They haven't given any specifics as to when he will be going home, but at least it is a possibility! He is being moved to another hospital soon, the day is yet to be determined.

For those of you who have been asking, the Stater Bros in Calimesa will be holding a Blood Drive on July 10th to benefit Jordan's Cause. More details will follow soon!

Exciting News!!!

Jordan can now eat real food! His first meal in five weeks was tuna, tomatoes with ranch, a roll with butter, and milk to wash it down! Wally was bringing him a chicken teriyaki bowl from Jack in the Box, at his request. He said "it's gonna be good!"

He is now able to walk around a little. He's taking baby steps to use the bathroom. He was able to take a shower yesterday. While in the bathroom washing his hands today he looked in the mirror and said "it's gettin' bald" of course meaning his hair. He's alright with it though.

He will have chemo and a bone marrow test tomorrow. No g-tube. They don't want to risk a collapsed lung while inserting the tube, so they decided against it for now (the mass is still putting pressure on his lung). The CT results still show the mass, obviously. They are looking to move him again soon, and are still looking for a good rehab center close by.