Jordan's Cause

It's Been Two Years!!!

2011-06-02T04:02:00.000-07:00

My goodness…times flies when you’re having fun! I can’t believe how long it’s been since the last update.

Once it was time for Florida to come, we became extremely busy, preparing for the trip, fitting in doctor’s appointments and juggling three baseball teams between both boys. I guess you can say, we’ve been a bit busy but who isn’t!

So…here it goes. Our Make a Wish trip to Walt Disney World in Florida was absolutely more than we could have ever wished for. They took care of every detail making it the most satisfying and gratifying trip ever! We hit the Magic Kingdom, Epcot, Animal Kingdom, Hollywood Studios, Downtown Disney, Sea World, Universal Studios, Adventure Island, and Wet n Wild. All in one week, with sometimes two theme parks in one day! We were given VIP passes and were always escorted to the front of the lines so no waiting was ever involved. We even got up close and personal with dolphins and were able to feed them. The boys never stopped and always wanted to go go go! (And that we did)!

The village we stayed in was called Give Kids the World, it was a theme park in it’s self with restaurants, shows and parties that we really didn’t have time to take advantage of. Every morning a staff member would deliver a special gift to Jordan and when we first arrived our refrigerator was stocked with food and drinks. I could just go on and on about it. That alone was a very magical and whimsical place that made every child feel so special. Mainly this facility is ran by volunteers…again no way to describe all the little details and how truly wonderful this village was!

Weather was perfect…boy’s first plane ride was great and we even had a black stretch hummer limo pick us up and bring us home from the airport! I really wish I could describe the whole trip down to every detail, it was one made with a lifetime of memories! Thanks to the Make a Wish Foundation…truly a phenomenal organization!

Unfortunately, Jordan started to get sick with sore throat and stuffy nose on plane ride home that did end up with a fever and landed us almost immediately in the hospital. Yes…I know this was the last place we wanted to be after being gone on vacation and so exhausted. Once Jordan recovered, I got sick and took even longer than him to recuperate. But hey, we didn’t get sick on the trip and that’s what we were afraid of. So thank the good Lord for answered prayers!

Since then, Jordan has still been doing his regularly scheduled chemo along with chemo pills every night. The leukemia is in remission and I confess it will stay that way…in Jesus Name!!! School is going great for him and he is still very much involved in baseball. His hair is curlier then ever and the weight is coming on slowly but surely. I can’t believe today marks the 2 anniversary since he was diagnosed! We estimate that he has about 2 more years left of chemo therapy to go.

Still, there’s not a day that goes by that I’m not thanking God for his healing power that he has on Jordan’s body. We feel so fortunate that his life was spared. I admit…there’s always that fear in the back of my head that hinders me from having that complete peace I long for, but that’s when I start to remind myself of God’s promises.

When people ask, I always say when Jordan does good, we do good.

So…Shawn, Tristen, Jordan and myself continue to conquer on and fight the good fight. We really do know how truly blessed we are and may you all never take the precious life that God has given you for granted!

Psalms 91…this entire passage I have loved and stood on these past 2 years, let it minister to your hearts as well and may it carry you through whatever trials you may be enduring today…

No News is Good News!

2011-02-20T17:37:00.000-08:00

Hello to all! Well… you know what they say, “no news is good news”!

It has been quite some time since an update and Jordan; I’m pleased to say is doing pretty well. School is good, baseball is good, and spirits are good! He turned 11 in January and is thriving in all areas…we couldn’t be happier!

The weekend of Jordan’s birthday, he filled in as an extra player on Tristen’s baseball team and really did well. Jordan was a little apprehensive at first because the boys are older and he’s used to playing with kids on his own travel ball team, but he had nothing to worry about and held his own! It was a great way to spend his birthday…playing baseball! We wouldn’t have it any other way!

He still undergoes the same treatment and we are fast approaching the 2 year mark of Jordan being on chemo therapy with 2 ½ more years left to go. We continually make trips to Kaiser for blood work and chemo (at times it seems grueling) but really, we do appreciate life as we do so. Not to mention, the doctors and nurses are really our extended family now.

Next month is our make a wish trip to Walt Disney World, we are so excited and was just told by our make a wish finder, “That we are going to have the time of our lives!”

Jordan has been home from school all week battling fevers, a sore throat and a chest cold. We barely avoided a hospital stay, but because we remain in faith and trust God to carry us through every circumstance, we have been able to stay home! This is always our main priority! Today, he seems to be on the mend. I sure hope he’s taking a turn for the better, all though, we forget he’s not your average child, with the normal immune system. So patience is a virtue with us these days.

If I had to request the focus a prayer at this time, it would be that Jordan is strong and healthy, with no bugs, flu’s or viruses that would keep us home from making our trip to Florida next month. The last thing we need is to miss such an exciting trip to Walt Disney World.

May God be continuing to watch over your families, keeping them healthy and whole!

Hello 2011!!!

2011-01-04T19:59:00.000-08:00

Happy New Year friends! The holidays have come and gone…again! We all are doing great and Jordan is doing pretty well himself.

Jordan is still doing the normal chemo, along with continuous blood work at the doctor’s office. He was just in the hospital a couple of weeks ago for his spinal tap along with some chemo meds, which he tolerated well.

That day I was making a picture diary of Jordan’s typical day at the hospital to share with his classmates and I thought I would share a few with you.

I included our last picture of a very long day at the pediatric oncology ward, that I had a nurse take when we were finally walking out of those doors…the smile on Jordan’s made me realize what a trooper Jordan really is and how he has adapted to the life of a child diagnosed with cancer.

His weight is at an all time high at a whopping 74lbs! His hair is growing rapidly after loosing it for the second time caused by the radiation to his brain. The guessing game between Shawn and I is…will it come back curly like the first time it grew in after loosing it from the chemo or will it be straight like it originally was?? Jordan wants it to be curly…I prefer it to be long and straight! (I still try to hold on to any of the old Jordan that brings me back to how he was before the “cancer” days).

Christmas and New Years were much better than last year. Last year during this time we were still undergoing the aggressive chemo therapy that put a damper on our holidays. This year, Christmas was spent with family and lots of festive activities such as ice skating, a Christmas play, movies, games, and plenty of fighting with Tristen while on Christmas break!

To make things exciting over the break…the week before Christmas Jordan ate a bite of See’s Candy that he thought did not have peanuts in it, but the piece of candy did and Jordan started with an allergic reaction to where his throat began to close up. To make a very long story short, we had to call 911 and he had to go to the emergency room in the ambulance…as if we aren’t at Kaiser enough! (And this was the week we weren’t even due there)! Thankfully, the bite he ate had very little peanuts in it. I can’t imagine the reaction had it been larger! And for the record, we always inspect the piece with him before he eats it but this time he felt confident on his own that it had no peanuts and did not check with us. Again…God has his back! He recovered with flying colors but I must say it was a very scary moment for the entire family!

As if the peanut reaction wasn’t enough excitement for the holidays…the week after Christmas the boys were playing baseball in the front yard and Jordan threw a baseball into my back expedition window shattering it to pieces!! It was just what we wanted…especially with all the rain!! NOT! There’s never a dull moment with us!

New Years was good...no mishaps! Last New Years Eve Jordan was super sick in the hospital from heavy chemo, so this year we were able to make our annual trip to our family’s cabin out in the desert and the boys and their cousins rode quads and bikes till their hearts content despite freezing weather!!

School starts back today. Prayers will continue for both boys to be protected from any germs and bugs that would land Jordan in the hospital and baseball resumes for both of them! I can’t even look at Jordan without saying, “THANK YOU JESUS”! He is our walking miracle! I’m so thankful 2010 did us well and now we enter 2011 with the same hope, faith and expectations that God will provide, protect and continue his miraculous healing upon Jordan!

In March we will go to Walt Disney World in Florida for Jordan’s “Make a Wish Trip” that we are very excited for! Jordan will be turning 11 on January 15th…this marks another milestone! So thank you all for your continued support and prayers as Jordan continues his journey filled with high hopes and dreams that will be a testimony for all!

May God richly bless you and your families in 2011!

Thanksgiving Blessings

2010-11-25T08:20:00.000-08:00

I can’t believe a month has already flown by since I last made a post. Things have defiantly been on the mend since the last time I made an update. Jordan has been doing pretty good, as always his counts are up and down which makes the dosage of his chemo pills constantly change. Sometimes this change is needed to allow his counts to recover and give his body a break.

We did have another scare with a fever that came on a couple of weeks ago that unfortunately landed us in the hospital for a short time but thankfully the fever went away and was just symptoms of the common cold. He is back in school now full time with tons of germs brewing all around him so this can be expected…of course we do all measures possible to avoid any bug.

Jordan is almost back up to 70 lbs, we are constantly trying to shove food and protein drinks down him any chance we get. His wonderful doctor, Dr. Horvath made arrangements for us to meet in Palm Springs with a nutritionist that specializes in patients undergoing chemo therapy…she had lots of helpful ideas for Jordan to gain weight along with putting him on some special supplements while going through the chemo, as we still have nearly 3 years left to go.

His hair started to grow back a few weeks ago and we are amazed how rapidly it’s coming in now. I absolutely love seeing hair on his head as it takes away from the “chemo look”. He finally was able to return back to practice with his baseball team, the Ruffryderz and was looking forward to playing only his second tournament with them this weekend but weather didn’t permit and it was rained out. Hopefully we will get a tournament in before Christmas so he can try to get back in the swing of things.

Tristen is a typical 12 year old and is constantly busy with either homework or baseball; he is currently playing with the 66ers and is preparing to get braces on this Tuesday…lucky him!

Shawn and I are doing well and just celebrated our 15 year anniversary! What many ups and downs we’ve had in these years but in the end love conquers all…even when life doesn’t seem fair at all. We are forever counting our blessings and at times don’t even need to say anything to one anther…only needing to glance at the other knowing what we’re thinking. There are many silent moments between us, enjoying the sight of Jordan...thriving, laughing, living life and under our breath, you can bet we’re thanking God for allowing him to be right here with us!

This Thanksgiving, I am grateful for the simple things in life…the four of us being under one roof, being able to sit at the dinner table together and doing things a normal family does such as watching a movie by the fire, it doesn’t take much to please us anymore.

I love these fall crisp cold days and love them even more as I share them with my sons and wonderful husband. I’m sure you are all embracing your families and making the most of every moment especially as the holidays approach. Continue to live life, smile, laugh and love…but most importantly don’t forget how Awesome and Wonderful our Heavenly Father is!!

Praising God!

2010-10-19T00:19:00.000-07:00

What an answer to prayers! Jordan’s bone marrow test came back negative, no Leukemia cells were found. Thank you all for your continued prayers during this time for us!

Jordan was having similar signs of what could have been a relapse but it appears to of been side effects from his brain radiation. The doctors say this is about the time for him to start having some delayed reactions and the fevers were just leaked to a virus. Thankfully, the fevers stopped this past Tuesday. We have gradually started him back in school but he doesn’t last to long because he is just so weak and sleepy, we have him doing half days. Unfortunately he has lost 5 lbs, bringing him back down to 65 lbs. We encourage food every minute but his stomach has shrunk so much and his appetite is very little. We just have to be patient for that weight to come back on. His is still bald from loosing his hair back in August but you can see his hair starting grow now.

I was happy to hear that they felt it was best to postpone his spinal tap along with his chemo for about another month. They want him to recover from all the side effects of the radiation before they zap him with some more chemo. They might consider doing his monthly chemo next week; they will decide this at his next appointment. In the meantime, his counts are pretty good. His ANC level is around 1000...no where near the average child but acceptable for Jordan at this time.

Again, we are so relieved that his bone marrow is clear…the Leukemia still remains in remission! We rejoiced with tears of joy that day. We are in awe of God’s faithful promises and like my sister reminds me, the Lord will complete the work he has started in Jordan and never doubt the power of prayer!

Thank you Heavenly Father for your Mercy that endures forever!!

“For I know the plans I have for you”, says the Lord. “They are plans for good and not for disaster, to give you a future and a hope”. Jeremiah 29:11

Trying to Remain Positive

2010-10-10T18:20:00.000-07:00

Hello Everyone. Just when you think all is well, something pops up to make you worry…

Last Saturday, Jordan started having fevers that we hoped would go away but they didn’t and we ended up in the hospital for 5 days. He had no other symptoms but fevers with chills, being very tired and no appetite at all…it all came on very quickly. They ran all routine blood tests for bacteria and fungal infections and even tried to determine what type of virus it may be. After being on heavy antibiotics, they felt it was safe enough to stop all antibiotics and just let whatever virus he had run its course. Thankfully, they agreed it was safe to come home on Thursday and have allowed us to give Tylenol for the fevers and just push as much food and liquids as possible.

To much of my surprise, they are still going to proceed with his spinal tap and chemo medicines (that he gets every 3 months) this Monday. The doctor says his counts look good and that it would be ok to do so. They are also going to do another bone marrow test the same day just to make sure the bone marrow is still clear. The last time he had his bone marrow checked was about a year ago. His bone marrow has never had any Leukemia cells in it, so our hope and prayers are that it has remained clean and clear of any unwanted Leukemia cells. Unfortunately, when I made a call to the Leukemia/Lymphoma Foundation and actually spoke with a specialist I found out that Jordan has some symptoms of a possible recurrence. This has thrown us in a panic and our hearts and minds are filled with worry and fear that at times are unbearable. We’re trying very hard to remain in tact for Tristen as we don’t want to weigh him down with too much worry for his brother.

Since Jordan has been home, he has been sleeping pretty much non stop, hardly eating and still running low grade fevers. He just looks sick, with droopy eyes and has a pale complexion, with really no life inside of him. Every once in awhile he will wake up to watch some playoff games of baseball and play a round of rummy with one of us.

We are trying to remain positive and put our complete trust in God that this is just a virus and eventually he will be over it, but it’s much easier to say than do. There’s no doubt in my mind that it has been all the prayers that have gotten Jordan this far, especially in the beginning when things seemed so hopeless. Now, we will continue those prayers and keep our hope and faith so that it will carry us through no matter what we find out from Monday’s tests results.

I pray for Gods Mighty Healing Power to work supernaturally in Jordan’s body right now and in this next week to come. I especially pray for peace of mind upon all of us as we wait for test results of the bone marrow. Please stand firm and stay in agreement with us as we continue to fight this battle for our precious son.

Hebrews 4:16 So let us come boldly to the throne of our Gracious God. There we will receive his mercy, and we will find grace to help us when we need it.

2010-09-10T16:47:00.000-07:00

It’s Monday morning, 4:30 am and I have hardly slept. My mind has every emotion you can think of…

The first two weeks of school for Jordan went very well. He was welcomed with open arms. By the second week, Jordan developed a runny nose and cough but it never got bad enough for medicine, I just hoped and prayed it wouldn’t turn into anything more. But approaching our third week of school, a fever put us in the hospital for one day and one night. We returned to the clinic the next day for doses of antibiotics incase a bacteria infection was brewing. Thankfully, no bacteria showed up in his blood cultures and the fever was just related to a common cold.

His counts were very low for the second time in a month so he was put on independent study for the week. Again, all chemo pills were stopped to give his body time to rest and recover. As much as he wanted to be back in school, it was too risky to send him. We are due back tomorrow to check his blood work.

Unfortunately, his hair has come completely out due to the radiation. His teacher has compassionately agreed to let Jordan wear his baseball hat in class…loosing his hair again has not been easy for him.

He is doing fine now and will return to school Tuesday. His travel ball team has already started their season without him, competing in their first tournament this weekend. His coach tells us to get him healthy again so he can join the team… the radiation has taken more of a toll on him then ever imagined and going back to school has been a huge adjustment for him…so playing baseball may not even be in the cards right now.

Ever since radiation, the past few weeks have set me back a bit. I feel myself spiraling down with a ton of emotions getting the best of me. I guess you can say seeing Jordan with a bald head again is a constant reminder that yes, I have a child that’s fighting cancer (even though it’s already been beat and we’re just going through the process now).

Do you all remember when Jordan spoke at a fundraising dinner for the Cancer Society? He was asked by friends we met, whose daughter had Leukemia as a teenager and ended up having the same doctors as Jordan. Well, it is with great regret to have just found out the cancer is back and she is now in need of a bone marrow transplant along with even more aggressive chemo therapy than before. Her name is Raeleen, she just tuned 20 and had just started her first week of school at Cal Baptism at the time of her relapse. She is an absolute beautiful young girl who now has to once again put her life and hopes on hold.

This news has set me back and I am completely devastated. I feel the pain of that family and her mother’s….I know exactly the despair and heartache they must be feeling as they walk those halls of Loma Linda. Thankfully, they are a family full of faith and completely trusting that God will see them through once again. I can only imagine what Raeleen may be feeling. I pray she has the fight left in her and that God will give her the strength she needs to endure a very difficult road. She and her family need prayers around the clock right now.

I know I usually leave off with something encouraging but I don’t have it in me. I am sick physically and mentally right now. I am trying very hard to cast all negative thoughts down and surrender all to God so I can be the mother and a wife I was called to be…it’s a lot easier to say then do when you’re in a world of hurt. This news with Raeleen has been the last thing I needed to hear. She gave our family hope. I guess for now I’ll take the advice of her mom, written from their blog, to take one day at a time…

My Little Hero!

2010-08-22T22:14:00.000-07:00

Hello all…I’m more than thrilled to announce that Jordan is done with radiation! We actually started it a week later then anticipated because of his counts being too low. But, oh how happy we are that his last treatment was this past Wednesday!

Last Sunday afternoon, when we got home from camping up in the mountains (to get a quick getaway in before school started and to give Jordan a change of scenery other than the radiation rooms at Kaiser), I read a wonderful comment made by Keri on the blog. She shared her story of her daughter that was diagnosed with T-Cell Leukemia almost 20 years ago and now how she’s being released from the care of her oncologist!

First off, I couldn’t even get through the first few sentences without crying. This comment meant so much to me in many ways. This is the first person who I have EVER came into contact with who’s child had T-Cell and to know she’s been a survivor for so long and is now being released from doctor’s care, was just what I needed to hear! So CONGRATULATIONS Keri on hearing those words that I’m sure you’ve longed to hear for so long. Your comment was a great encouragement to me and the rest of my family…including Jordan! Reading comments like this, reminds me that yes…I need to continue doing this blog!

Unfortunatly…the radiation did not go as smoothly as we thought it would. It was much more on Jordan then we ever anticipated…physically and mentally. He started feeling nauseous almost right from the beginning which brought back a whole flood of emotions for me. It brought back the times of undergoing the aggressive chemo and I caught myself questioning our judgment of even doing this radiation. I felt like I was torturing him all over again and not helping him. But when I read the comment from Keri and she said that not getting the radiation was not an option, I realized (with the help of Shawn and others) that it was indeed needed.

Thankfully, we only had to do it for eight days but I could definitely see the fear in Jordan’s face every time we went. It broke my heart seeing them lock the mask on his face each time and on several occasions when we would go back into his room to get him, he had tears that filled his mask. For a 10 year old this was traumatic (gosh, for an adult it would be traumatic). But by Gods strength he gave him each day to go in and do this, he overcame yet another phase in this journey with flying colors and now Jordan in my eyes will always be my “Little Hero”! There’s no other word to describe it other than this!

Unfortunately today, his hair has started to fall out. They warned us of this, but doctors are hopeful it will just thin and not completely fall out due to the amount of radiation he received. I pray that this is true.

On a much happier note, we’ve hit another milestone in Jordan’s Journey. He officially started back to school and is now a big 5th grader! We were a little concerned if he could even finish the first week due do the radiation making him sick but thanks to the nauseous medicine and his determination to be a normal child again, he made it! We are completely blessed to have him at Calimesa Elementary School! Everyone there is wonderful, caring, and nurturing towards Jordan. They are all so happy he’s back!! He has a wonderful teacher (Mrs. Peterson) who is a Christian and texts me bible verses every morning, I love it! (This is great because I need all the encouragement I can get). They really made a week I thought was going to be very difficult quite easy. Tristen also got off to a great start at middle school! This week has been quite a transition for all of us, but in a good way!

A lot of people are asking me if Jordan is still getting chemo. The answer is yes, we have 3 years of maintenance chemo left. This consists of chemo pills daily, chemo in his port once a month which follows with 5 days of steroid pills, and every 3 months we are due in the hospital for spinal taps (along with chemo in his spine on those days).

So… as you see, the road is far from over but it has already begun as well…Jordan’s health is being restored and now Jordan will continue to be strengthen by God’s healing power which brings us the peace we need to fight and to overcome this. When he’s down, I always tell him one of my favorite verses…Phil. 4:13, For I can do ALL things through Christ Jesus who strengthens me.

And so can you…

SWEET VICTORY!

2010-08-01T23:24:00.000-07:00

Hello All! My how time flies when you’re having fun! Summer has sure kept us busy! The days are just flying by. I can’t believe before we know it, the boys will be back in school and yes Jordan is returning and starting the 5th grade and Tristen will be starting middle school.

We actually just got back from vacation at the river, filled with family, fun and lots of laughter. Jordan made up for missing this trip last year and had tons of fun on the boat, tubing and bonding with cousins!

We finally ended the All Star season towards the end of July and ended it with a BANG for Jordan’s team! They did wonderful and had an awesome time! Shawn coached and had an amazing group of kids that won their district title! They were the only team in our division to do so. The team went on after that to represent our district in Sectionals but was eliminated after loosing two games. I thought the boys would be upset but really it seemed they were all relieved and ready to start their summer vacation. None the less…they have so much to be proud of after such a huge accomplishment winning their district! I caught myself tearing up the last game they played as I sat there watching Jordan play...thinking what a SWEET VICTORY it was that he was playing at All Star level! Last season, Jordan had to deal with the fact that only his brother could play wishing he had the strength to play himself. Again…another milestone! Who would have thought Jordan would be where he’s at today! God is so good and has answered all our prayers!

I now have to have the confidence that God will carry us through this next journey in Jordan’s life. I last mentioned we had a consultation in Hollywood to discuss the Cranium Radiation that Jordan is due to get. We actually start this radiation in Ontario on August 4th for 8 days. This is a preventative treatment as T-Cell Leukemia can tend to come back in the brain. The odds of this coming back if we don’t do this treatment is extremely high, so of course we want to do what’s in the best interest to prevent this from coming back. One good thing they tell us is the dose of radiation has significantly lowered in the past few years. So that means fewer risks in side effects.

We had to go in for them to make a mask that molds to his face for treatment in order to help his head from moving during the radiation. The mask will lock down to a bed Jordan is laying on to prevent any movement in his head so the radiation can go only to his brain. They say each treatment should be done within 5 minutes.

To be honest, I really can’t think much about this because fear instantly sets in. As a mother I’m constantly worrying, this whole thing makes me a big ball of nerves. My faith’s for sure going to be tested during this time. I know we’re not the only family battling such illnesses as this, so when I feel this worry come on, I start to pray for all who are battling for their loved ones. My heart aches when I think of what people all around are going through, I do know now first hand we’re not the only ones. With that being said, please join me and my family in prayer as yet another phase in Jordan’s Journey is about to begin. Jordan will need peace of mind as radiation begins in his brain. Also pray for strength in his body and for protection so NO side effects will affect him now and in the years to come.

For I know God has a plan in his life and this is just a small bump in the road to complete recovery and restoration in the innocent life of our child.

Thank you and God's Blessing to all of you and your families!

Living Life

2010-06-19T22:38:00.000-07:00

I know it’s been quite some time since I’ve written, but life lately has been extremely busy consisting of baseball, weddings, graduations and then…more baseball! I have found myself saying a lot lately, “That’s ok because we’re living life and a year ago, we weren’t living life”!

Since I last wrote Jordan has spoke at a fundraising dinner for the American Cancer Society and spoke like a pro! His doctor even attended and spoke, she expressed how pleased she was with Jordan’s recovery and talked about how depleted he was when she first saw him. He amazed everyone at the dinner (including us) with his poise as he shared his story and how money raised is so important for research. How important you learn these things are, when it happens to you.

We’ve been to Bakersfield for his cousin graduation, had my niece’s wedding, ended our home school journey with Jordan’s wonderful teacher, attended Tristen’s graduation ceremony for completing the 6th grade and moving on up to middle school, and have attended many baseball games between both boys.

Baseball season with Little League is officially over but I must say…Tristen and Shawn’s team definitely ended on a high note! They had an amazing team who finished 1st place in the regular season with an outstanding 17 wins and only 1 lost. They ended the season with a tournament where they placed 1st and received trophies for both! How very proud I am of them both! What an accomplishment!

Jordan’s team did well, finishing the season in 4th place of 9 teams and ended up in 3rd for the tournament. It was an accomplishment in its self that he even played and did so well! (It was purely his determination because I know his body still has a lot of strength and weight to gain). Which by the way…he finally weights 70 lbs.

Both boys made it for All Stars! Shawn has chosen to coach Jordan’s team. Jordan will be on the 10 year old team and their tournament will take place in Yucaipa and Tristen will be on the 11 year old team, playing his tournament in Yucca Valley. So practices with their new teammates are full steam ahead.

Jordan is due to get “Cranium Radiation” as a preventative treatment for T-cell Leukemia. We have a consultation coming up this Tuesday in Hollywood to discuss and make plans for treatment. I haven’t made mention of this yet because I just wasn’t ready to deal with it and wanted to focus on and enjoy the baseball season. Like the chemo did, the whole radiation thing makes me ill! But we know it’s needed to help keep this sick disease away. I don’t know how he will respond, I don’t know side effects or when this will even take place. All I know is the focus of prayer will need to be to get us through! Jordan especially!

On Jordan’s one year anniversary (May 26th) since his diagnosis, to celebrate we let orange (the leukemia color) balloons go with all his teammates in honor of everyone who has had to fight and endure this type of cancer. After, Jordan wanted Sushi…so we went, which he claims will now be our tradition.

With it being one year, everything takes me back where we were exactly a year ago and emotions take me all over the place. I have found myself doing a lot of reminiscing about long hospital stays, the images of Jordan being on life support, the day he coded and they prepared us for brain damage, Tristen not being able to finish his school year, Jordan learning how to walk, talk and eat again…the list goes on. I think about how a lot of people’s life stopped that day because ours did and really I don’t know how we made it through.

I appreciate the small things in life now, for instance just falling asleep in my own bed, and knowing we are all under the same roof. I appreciate the love and support from family and friends who never left our sides when the only thing that surrounded us seemed to be more and more bad news of despair. Really…we felt our life was over but thanks to our Heavenly Father he had different plans!

I now can share our story of success and how MIRACLES can happen! As a mother, I hope I can be an example to others. Our hearts are always going to be heavy and worry for our children but it’s our job to never let up on our constant battle for them, especially in prayer.

I’ve seen Shawn be the true example of a father whose strength stood strong for his family when we needed him most. I’m in awe of what a large burden he had to carry when all odds seemed against him, when I was so weak and couldn’t even make a decision, he was right there being the backbone of our family, lifting us up, NEVER giving up.

I’ve seen Tristen be a devoted brother that was in his bible daily, praying and crying himself to sleep every night for his brother that he wanted to see come home so badly. And because of our trust and faith in God it happened!

Thank you again for your continued support through prayer and encouragement as we are not done yet, we still are in battle everyday especially with this radiation coming up.

I’ll keep you posted as Jordan’s Journey continues…

2010-05-14T22:50:00.000-07:00

Hello All…Jordan is doing really good, baseball is keeping him busy and bringing normalcy back in his life again, which we all welcome! All chemo treatments in and out of the hospital have been going well and his ANC level is currently at 1400.

He is still being home schooled by his wonderful teacher, Patti Smith. When he’s not in school or at baseball, Jordan loves watching every baseball game on the sports channel (yes, even the repeats) and Full House.

Mother’s Day was wonderful because I got to spend it with both of my boys and not just one. I got very emotional that morning…Shawn made me a beautiful breakfast and I got to enjoy it with my WHOLE ENTIRE FAMILY! It’s the small things in life that please me now.

We’ve all been super busy with baseball of course (and yes, Jordan’s passion is still full steam ahead)…which takes up most of our time. There is also a wedding for my niece, Jamie coming up on June 5th and we have a graduation for my other niece, Jessica who lives in Bakersfield (Jordan is super close to her). With all these family events, we wouldn’t have it any other way! This is what life is all about and it sure beats worrying about hospital stays and if Jordan will be super sick from the hard chemo and us not being able to enjoy such events as this!

I’m so happy for Tristen’s baseball team and Shawn as well (who is the manager)…they are having a GREAT season! I thought there for a while that they would go undefeated but they finally had their 1st lost on game 13. They all handled it very well and didn’t even hang their heads much which pleased me because really…they’ve had an awesome season. The regular season will be over at the end of May and end off with a tournament.

Jordan’s team is doing well. They’ve had some loses but still are ranked middle of the pack. He’s pretty much come to terms that he’s on a Dodger team and not the Angles.

Tonight Jordan is speaking at a fundraising dinner where all proceeds will go to the American Cancer Society. This will be a first for us but now is so near and dear to our hearts.

With the year anniversary of Jordan’s diagnosis coming up at the end of this month, we’ve been going back to where we were a year ago. Little did we know what was around the corner…how thankful we are to say the least! I will share more thoughts about this at it draws near. My thoughts have been all over the place…

All I know is…I’m so happy we serve a God that is bigger than any obstacle, circumstance, or sickness that may come our way!

2010-04-20T23:58:00.000-07:00

Well…it’s been quite a while since the last update, guess you can say we’ve been super busy. Yes with baseball, which is always a treat but more so, we’ve been busy with the boys being sick! I actually can’t believe it!

Last Monday night through Tuesday we were in the hospital for Jordan because he had a crazy cough with a fever. A chest x-ray revealed it was bronchitis, thankfully a mild case. With his counts being pretty good and considering he’s on a lighter chemo now, they didn’t make us stay too long. The doctors know we despise being there! We came home on some antibiotics and Jordan is doing much better!

Tristen, on the other hand, well…he’s a different story. He finally recovered after two long weeks from that horrid bacteria infection but it did take some time for him to bounce back and to put some weight on and for him to not look so green in the gills. He finally was able to start the baseball season with his team and is having a wonderful start to the season. BUT, last week he woke up with a fever, sore throat, and a stuffy nose! I can’t believe it…the kid was just sick!! So, we have him at Grandma Judy’s to keep any germs away from Jordan (who is recovering from the bronchitis) and hope whatever Tristen has is over much sooner than the last sickness he had just a few weeks ago!

Needless to say, we are very frustrated and just don’t get it! We take every precaution necessary for the boys and us to not get any germs. I find myself saying lately, “When are we going to catch a break!?” But then instantly, I tell myself, we did catch that break…my son is here and the Leukemia is gone! Then I go right into counting my blessings. Not a lot of parents are able to say that when their kids have been so seriously sick. So I thank God for what we do have rather than focusing on the inconvenience we are experiencing for that moment. I must say though…I would so love a break from sickness right now! We’ve had enough!!

Jordan was due to have his spinal tap Monday, (the spinal will be every three months on the maintenance phase) but they are postponing it for a week and stopping all chemo pills until he fully recovers from the bronchitis. Which is fine by me, it puts off another hospital stay! On a much happier note, Jordan’s friend, Jared and his family blessed us with Angel tickets a couple of Fridays ago. The four of us were able to go together and really enjoyed ourselves. The seats were really good…field level and right up the first base line. Tristen and Jordan even made an Angles sign hoping it would bring them good luck but…they didn’t win.

Their Friday night firework show was pretty cool. During the fireworks they played many songs and one of them was their theme song for the Angels which is, “Calling All Angels” by Train and ironically we have that same song on the blog as one of Jordan’s theme songs…when it played, I got a huge lump in my throat and got totally choked up as I sat their next to Jordan watching the fireworks. Thankfully, the lights were out and no one saw me tearing up! It was a wonderful night none the less, so thank you Wagner Family for a fun evening!! We really appreciate it! Jordan also got to use a gift card in the store and bought some fun stuff to finish decorating his room in Angel’s Baseball.

All in all, Jordan is pretty good. He’s playing baseball (with the same passion, sometimes too much passion), gaining weight (slowly but surely) and his hair is coming in beautifully (maybe even a tad lighter). I really couldn’t ask for more. Today, he was talking and joking with me in the car and it brought me back to the old Jordan that I remember. I love it!

I want to end with…I’m so completely taken by how Awesome our Heavenly Father is and how he knows exactly what we need! Even though we go through trials and tribulations, His Grace is more than enough and he will get us through each day!

2010-03-31T21:28:00.000-07:00

Hello All…Jordan is doing so well! His first game was last Saturday and it was also Opening Ceremonies. A pretty special Opening Day Ceremonies!!

Shawn and Jordan got to get up and speak to the crowd, thanking them for supporting us during this difficult journey. Shawn gave a brief rundown of what we’ve endured during these last 10 months. There were many excited cheers for Jordan being on the field as he stood there next to his dad. It was quit emotional. Jordan, himself couldn’t even hold back the tears when his dad announced that Jordan would actually be playing a game that day. Jordan got to thank everyone for their prayers, stating that it was because of all the prayers that he was standing there at that moment. So many people came up to us expressing their joy for Jordan and our family that day. But someone really stuck out in Shawn’s mind and that was an ICU nurse from Loma Linda that actually took care of Jordan at his worse when he was on life support. She was so full of emotion she could hardly talk. Shawn said tears were just rolling down her face and she kept saying, “It’s a Miracle, he looks so good”! She couldn’t wait to go back and tell everyone she works with about Jordan doing so great. I didn’t get to meet her on Saturday and hope Shawn can point her out to me so I can personally thank her for taking such good care of my son. I’m so appreciative to each and every nurse that spent their 12 hour back breaking shift taking care of Jordan!
Jordan did awesome at his game! He played short stop, 1st base and pitcher. When he pitched, it was the last inning…he came in and closed the game. I got so nervous for him, I gave myself heartburn! But there was no need for me to worry. He came in and struck 3 batters out with no runs scored! He did wonderfully!! Shawn got to help coach and it was a great game! It was such a gratifying moment for Shawn and me! Not to mention, many fans came out to support Jordan that day!

Unfortunately, Tristen was still super sick the day of all this. He was unable to attend Opening Ceremonies, Jordan’s first game, and even his own game. He was very upset and sad that he had to miss this…he knew what a big deal it was for Jordan.

Tristen is still sick and having a real tough time with a stomach flu that has turned into a bacterial infection. As of right now, we are on day 11 of him being sick; he has lost weight and has not returned to school. We were at the doctors on Wednesday, Friday, and Sunday of last week. They wanted to admit him into the hospital for observation on Friday but thankfully no beds were available. So an IV was started for dehydration at the doctor’s office. They have done many tests on him including lots of blood work and have determined by his white blood count that there is definitely an infection brewing. He tested negative for parasites and E coli, along with many other sicknesses. It has been very frustrating for all of us and I have to agree with my friend that made the comment, we need a “Free pass card from sickness for a year”! But…I just count my blessing and hope and pray that tomorrow will be a new day and soon this sickness with Tristen will be behind us. Prayers sent for Tristen are needed at this time; he’s getting weary and doesn’t understand why he has been sick for so long. I don’t blame the poor kid, he’s already seen so much with Jordan and now he’s deathly afraid of anything having to do with doctors.

When things like this happen I just put my trust in God and surrender all to him. I place my children at the feet of Jesus, knowing he can handle more than us. I always say…when we are weak, he is Strong!

Gods Blessing to you all on this very special holiday…Easter!

Baseball Begins…

2010-03-24T18:49:00.000-07:00

Hello All and Thank You for continuing to follow Jordan Journey’s. I want to make mention that we love reading all your comments and are so appreciative for all the encouraging words, so please keep them coming, it helps in more ways than you know!

Yesterday, Jordan had his monthly chemo at the doctor’s office and I’m proud to announce he weights 65 lbs. His counts are at a pretty good level, for those of you who know what an ANC level is, it is at 1685. They tell me anything over 1000 means he still has some fighting cells left in him to fight off infections. I’m pretty sure his counts should stay around this number throughout the maintenance phase, but anything’s possible and they could change at any moment. His counts are still nowhere near where the normal child should be at so we will keep a watchful eye on him, of course.

He still is on a hospital home-school program and I must say, he’s very anxious to be back in school but his teacher, myself, and his dad have other thoughts as far as that is concerned. We’re all thinking for sure next school year, but if Jordan had it his way…it would be now.

Jordan is still very excited to be playing ball and has not missed a practice yet. His first game is this Saturday, he’s so eager, he can taste it!! It brings tears to my eyes just thinking about it! He’s come such a long way since that dreaded day back in May. To think…he’s a kid that had to learn to walk, hold his head up, talk, and learn to swallow again and now…he’s playing baseball (which he’s pretty good at)! It’s a dream come true!! I’m constantly thanking my lucky stars!

Sadly his big bro, Tristen has been so sick with the stomach flu since last Friday which means he’s had to miss out on a couple scrimmage games this week. Tristen’s first game is this Saturday as well, we really hope his strength is up by than so he can start the season. Plus, it’s just not the same for Shawn when he’s coaching and his son’s not there. Thankfully, none of us have come down with it. Jordan’s been a little bummed because his Christmas break was ruined because of all the aggressive chemo he was on at the time and he was really looking forward to an eventful spring break but with Tristen being sick, it’s put a bit of a damper on things.

In any event, we are delighted with where things stand with Jordan and are so excited to be hitting another milestone with him being able to play baseball again.

God is good and He hears our prayers! Thank you Lord for shinning your light on us…

Happier Days...

2010-03-07T23:35:00.000-08:00

Greetings to all! Jordan is doing great on the maintenance phase! This has been the break we have all been waiting for! I know now what they meant when they said, “hang in there, things are so much easier on the maintenance phase.” Jordan appears to be getting stronger and stronger each day. Although his weight is not coming on as fast as we would like, due to him being more active I think it’s slowing the process down.

We recently had the pleasure of taking family photos up in Crestline. The pictures say so many words, with much meaning behind our smiles. They represent enduring and suffering while on a rather difficult road that at times seemed unimaginable, but at the same time our smiles represent where great will and determination can lead you. I don’t think I’ve ever been more proud to take a family picture as I was on this day.

I am so excited to tell you all that Jordan got the green light from his doctors to play ball! He actually went to his first practice on Tuesday and he could not have been more thrilled! He anticipated it all day and hoped so bad that it would not get rained out. When it was finally time to leave, Tristen and I were first in the car waiting on Jordan and when he finally jumped in, he had the hugest smile on his face and proudly announced, “I’M GOING TO PRACTICE!” and when he went, you wouldn’t even of noticed that he had been so sick (with the exception of his running, he needs a bit more muscle to get where he was). But nevertheless, he seems to be the baseball player that we all remember.

I found it fitting on that day as we drove to the field to pray with the boys, just thanking God to allow this moment for Jordan and for allowing Jordan to be thriving and living life again...what an answer to our prayers! That day brought such satisfaction to us and Jordan finally seemed like a normal 10 year old again.

Our Pastor always says our life's are like seasons…just like we have fall, winter, spring, and summer…we’re going to have those different seasons in our own personal lives and those seasons will eventually end, giving us something new to focus on. Unfortunately, some seasons seem longer than others but let me tell you my friends…our family is well on its way of starting another season, one that is so needed with nothing but great expectations to come.

Thanks to all of you that follow Jordan’s Journey, may it be an example of determination, strength, and will to keep fighting the good fight…

Day by Day...

2010-02-19T13:24:00.000-08:00

I know its been awhile since the last update, I guess you can say, it took us a bit of time to bounce back from some hard times (mentally).

First off I would like to say, thank you for the encouraging comments. We all really need to hear words like that, so thank you very much, I read each and everyone of them. It's obvious to us now that the physical battle has seemed to be won, but now it appears mentally...things can be challenging for us. That's when we really need those prayers, so please keep them coming.

The weekend of Shawn's birthday, a fever that we thought may keep us home never rose high enough to put us in the hospital. Thankfully, God had other plans for us! We were able to go ahead with our plans for the weekend and head to San Diego. It was more than needed! There is a wonderful lady that gets her hair done at my sister's shop, named Patricia who has cancer herself and has really taken to Jordan's story, so she actually blessed us and because of her we were able to get away for a much deserved weekend get-a-way! We took the boys to Supercross (you see...they have two passions...baseball and motorcycle riding)! We actually went into the pits and they got to get pictures and autographs of some of their favorite riders. Supercross was a success and the rain didn't even ruin it! Jordan also got to go swimming for the first time in a heated pool (because he has a port now). He was like a fish out of water! Again...another milestone moment for us! The time away was so needed, we were actually able to enjoy life outside of hospitals, doctors offices, and always being at home, but mostly just to simply...BREATHE. It lifted our spirits more than you know for all of us!

The last time we had Jordan's counts checked, about a week an a half ago, they were on the rise. We are due back this Monday for the once a month light chemo through his port and I'm sure his counts will be checked again. I'm hoping they will be even higher at this time. What does concern me, is where they will be about two weeks after this chemo that is due on Monday because there is a chance they could come down again and we don't want that. The beginning of the maintenance phase is somewhat of a roller coaster and it will take some time to regulate his medicine in order to get the counts were we want them to be. I can happily say that Jordan appears to be getting stronger everyday. All he needed was some time to see that yes...there is life after this nightmare he has been living. In fact, we all needed to see it! Also, what we're seeing is hair, it's coming back and this pleases him tremendously!! He always took such pride in his hair, I don't think it can grow back fast enough for him.

We also have the start of Little League season upon us, which as you all know gives us much joy. Shawn will actually be managing Tristen's team in the Major division this year, which will give us something new to focus on. To much of our amazement it appears Jordan will be playing as well (pending a doctor's approval of course). We figured it would of been more towards the middle of the season but no...we figured wrong. He is more than ready!! He plays all the time with Tristen. His heart and mind are totally focused on baseball right now. He may not start off the strongest but I'm convinced, its just a matter of time that he'll be playing up to par and we'll be seeing that attitude out on the ball field that drove us so crazy! You see, he plays with heart and sometimes that shows out on the field (whether we like it or not), but you know...it's that feisty attitude that won his life back! And now it's that feisty attitude and determination that will allow him to play ball again, just bringing him one step closer to regaining his life back!!

I often find myself feeling like how a new mother would feel watching her newborn baby. I look at him and appreciate his life so much more now. Him being able to eat, laugh, and play with his brother does not go unnoticed anymore. Just to lay entangled with him on the couch and to feel the softness of his skin, to rub his ear lobes, to see the fullness of his lips, to run my check against his new hair growing in...that's what fills me up. I know now how precious life is and I'm constantly thanking God for allowing us stay a family of four.

It's still a day by day thing with us, but I do feel it's getting easier and on those days that aren't so good...I'll be looking forward to the next day when we wake up and Gods Mercy and Grace will be new again!! That's what keeps us going...

Maintenance Begins...

2010-02-05T01:37:00.000-08:00

On Monday, January 25 Jordan officially started day one of the maintenance phase. On that day the port-a-cath was finally inserted into his chest. He was sore the entire week from that but finally started to move around the next week. His blood counts are currently low, this Monday we go in to check them, I am hopeful they will start rising.

I had stated earlier what chemo was expected for him to take on the maintenance phase, but was unaware of another chemo pill he would have to take once a week. Unfortunately, every Monday he will be taking an additional eight and a half pills. These pills do make him feel nauseous the next morning.

Jordan has been fighting a low grade fever for the past couple of days which throws us into a frenzy because any temp over 100, and we are hospital bound. That alone makes us sick, we are so done with the hospital to put it mildly! Not to mention, anything he may get caused by a fever could not mean good news in his weaken state. So...we are constantly on edge and living in fear it seems. I hate to admit it but, we are human and living a normal life without worry seems so far away at this point.

To be honest, things have not seemed as easy as I had anticipated. The past two weeks, Jordan has been very scared the leukemia could come back. He's been sad and crying a lot saying, he does not want to fight anymore and is done going to the hospital. Three years out seems way to long for him to handle at this point. He gets it...more than we think and it breaks my heart to see the worry on his face.

Shawn, myself, and Tristen have also been struggling in our own ways as well. It is as if we are under attack and our happiness is being stripped away from us. Fear and worry has consumed us lately. You put stress into the mix, and your days seem unbearable. I try my hardest to keep these feelings from Jordan and hide when I can, just to shed a tear. Shawn has a hard time at work because he is constantly worrying about us. Tristen seems to never want to leave Jordan's side and feels overwhelmed at times. Sometimes, staying positive is harder than you would think. Lately the battle has been in our minds...some days we feel so pressed down on every side and we wonder when this load going to be lifted. This is when we lean on family to be encouraged, and this is when I get into the word, and when I pray and give all to God.

I had a friend tell me when Jordan was in ICU at Loma Linda that we need to place Jordan at the feet of Jesus and say take him...he's yours, its out of our hands, we can't do it all, only you can Lord. That's what I've been doing this week, surrendering it all to God. At the end of this journey, when Jordan is through with this next phase, we will look back and say, Thank you Lord...you did not fail us. Thank you for carrying us through in our darkest hours. We will be stronger than ever before, we will know that trials and tribulations may come, but that we can be victorious in the end.

I like would to say a very special HAPPY BIRTHDAY to my wonderful husband. He is the back bone of this family. He keeps us going and lifts our chins up when everything seems to overwhelming. He never lets Jordan or Tristen get too down and always says, let dad worry about it, I'm here, I'll take care of you. Without him we would be lost. He brings the ease we need in our home and always makes everything better. We love you!!

I've let it all out, you know where we're struggling...we're obviously battling still. What else can we do but pray and put are faith and trust in God...

Wonderful News!!

2010-01-23T13:11:00.000-08:00

After getting reports of a recent CT scan, the mass in Jordan's chest is shrinking! The doctors strongly feel that the current mass in Jordan's chest is nothing less of scar tissue consisting of dead cells and will dissipate in time. The doctors tell me not to worry...that if their was something to worry about the mass would be getting bigger, its doing the opposite!!

The maintenance phase is scheduled to begin this Monday, starting off with getting admitted into the hospital with a spinal where more chemo will be administered. The most important procedure that day will be the port-a-cath finally being inserted into his chest. This means no more pic line! This will be start of the three year maintenance phase we have all been anticipating. It does involve chemo pills everyday that will last the entire time. This absolutely concerns me...I have no idea how he will respond to this as Jordan seems to be so sensitive to every type of treatment. The doctors assure me most kids can go back to school and play sports so I am expecting easier days ahead. The maintenance phase will also include chemo once a month through his port, spinals taps every three months, and steroids once a month.

Jordan's birthday was a success! There was a sea of red everywhere in honor of his favorite baseball team...the Angels, with a few exceptions of Dodger Blue roaming around! It was the most I've ever seen Jordan play since he's been diagnosed. It was a birthday well deserved by Jordan and he enjoyed every moment of it!

We've hit some huge milestones...the mass shrinking, the maintenance phase about to begin, and Jordan turning 10. I have to say again, I never thought I'd see these days...when you're going through the storm, brighter days seem so far away. My prayers will be that Jordan's counts will raise during this three year phase, allowing him to be a little boy again, going to school, playing with friends, and of course...playing baseball. I have to keep telling myself...God's got him in the palm of His hands and He will allow Jordan the desires of his heart.

Thank you for your continued support and prayers. They will still be needed as we embark on this new phase of Jordan's Journey...

Jordan's 10th Birthday!!

2010-01-15T16:29:00.000-08:00

Today is Jordan's 10th Birthday! We will celebrate by having a family birthday party all decked out in his favorite baseball team...the Angels, asking that everyone wear their red Angel gear in honor of the party. When I think back to when he was a baby, I never imagined what a huge impact he would have on not only us as parents but to others as well. He's a feisty little kid but a fighter as well. I thank God everyday for allowing us to be blessed with him as our son and could not be more proud to plan such a special party especially considering what he's been through.

A recent CT scan was done on Monday of this week showing that the mass in his chest is still there and only a bit a smaller. The doctors are talking with surgeons to determine if it is OK to put a port in his chest at this time. I should know more after his doctor's appointment on Monday.

His second pic line became clogged earlier this week. The nurses tried to unclog it but were unsuccessful so they had to pull the line out. Jordan received his chemo on Monday through a regular IV. He is now doing well. I thought we were going to start the maintenance phase at the end of this month, but the doctors are now talking to the head of the T-cell Leukemia Board to determine if more chemo may be needed due to Jordan not receiving all of the chemo stated on the road map. There were times we had to call off therapy because Jordan was too sick and could not handle the chemo. We will know soon. They may want to give him a more aggressive chemo therapy. As soon as I know more details as to the doctor's plans, I will post an update.

Right now, we will enjoy his birthday!

Ups and Downs...

2010-01-03T19:02:00.000-08:00

The last two weeks for the Macias family have been full of many ups and downs. Jordan has had two full weeks of chemo and was in and out of the hospital and doctors offices more than we would of liked.

As last reported, he started off with a short hospital stay after receiving many different chemos that continued all through the week of Christmas. It was a miracle that we were not in the hospital during Christmas Eve and on Christmas day. He had a really rough week of being super sick but Christmas Eve...something happened and the light returned back in his eyes, he took a few bites of food and the corky (probably excited for Christmas) attitude was back. Now I know what they mean when they say..."Christmas Miracle." We were all together and not separated! Jordan was then able to enjoy Christmas day with family and enjoy new gifts.

This last Monday it all started again with a spinal tap back in the hospital along with other chemos that were to continue through Thursday. We expected it to be an easier week on Jordan but as the week went on, he only got worse. After trying to get Jordan to feel better and stop throwing up at the doctors office on Thursday, it was then decided it was best to admit him into the hospital. The doctors then made another decision, because of Jordan's weakend condition, to not proceed with the chemo that was due on Thursday and to stop the chemo pills that should have continued up until this Sunday. I'm not too sure how I feel about this...they told us that they knew I would be anxious about this decision but assured us that Jordan would be OK without finishing these particular treatments. The doctors feel that what Jordan has received these past two weeks have been at high levels and have done their job.

With some hesitation...the doctors discharged Jordan on New Years Day, they know how much we hate being in there and always try their hardest to make us happy. In fact, one of his doctors, came back to the hospital specifically to see Jordan, at 10:30 New Years Eve night. She said she just had to see him again and didn't like the way she had left him earlier that day. We are truly blessed to have the doctors we have, you see them so much, they turn into family.

We are scheduled to proceed with some light dosages of chemo this Monday, but that will be determined by blood work and how Jordan is feeling. His weight is back down to under 60 lbs. They don't seem too worried and they feel that his appetite will come back once the hard chemo is done with.

I have to say a special Thank You to my sister Sherrie, for coming with us on those spinal tap days and bringing some laughter into our hospital room. Also, Thank You to Big Brother, Tristen for going with us these past two weeks, always having to be the one to fetch the wheelchair, be his driver and help him throw up while I'm driving. I know this wasn't the best way to spend his Christmas break but Jordan could not have a more sensitive, compassionate brother.

I've never been more ready to say, "Bye Bye 2009" and "Welcome 2010." The year 2009 was filled with way too many tears for my family. While I'm forever grateful for triumphs in this past year, I'm ready for a New Year filled with New Hope and New Promises.

Thank you to all of you for standing by our sides during what was the most difficult time we've ever had to endure. Thank You for your dedication and faithful prayers that go out to Jordan each and everyday. And Thank You Lord, for NEVER abandoning us...

A Short Hospital Stay...

2009-12-23T13:28:00.000-08:00

Surprisingly and nothing short of prayers answered, Jordan was able to come home Tuesday morning after a heavy day of many different chemos given on Monday. He's definitely not feeling the greatest and feeling very sad because he is not able to do fun Christmas activities. We find it very hard consoling him at this time, he very much prefers to be out and about. This week started out with Jordan's spirits being wonderful considering what he was up against. Now, he's not so happy...you put not feeling well on top of that, and there's nothing but tears...it breaks your heart. We are due back Wednesday and Thursday for more chemo. He will also be taking chemo pills for the next two weeks.

I keep reminding him that the hard part of chemo will be over very soon and that easier days are just around the corner! I'm going to say it again, we never thought we'd see the day!!! Now, the challenging part will be getting through the holidays.

I want to add that this Christmas, we are not only blessed with the precious birth of Baby Jesus, but we are also blessed with the precious life of our dear Jordan. We are still are family of four strong and for that we will be forever grateful.

Thank you all for the continuous prayers in a battle that at times seems never ending. May you all be truly blessed this Christmas season!!

Chemo Will Begin...

2009-12-18T00:36:00.000-08:00

On Thursday Jordan had a doctors appointment that verified the pneumonia is better and his counts are well enough to start the round of chemo that was delayed last week. This coming up Monday we will once again be admitted to the hospital for another spinal tap with chemo that will consist of four medicines. One of which will be given during the time of the spinal, two through his pic line and one in pill form. We will stay the entire day on Monday and that night for sure. It will then be determined the next morning, after another push of chemo, if we will be able to go home. That will only be if Jordan is not to sick and throwing up. Regardless, whether we go home on Tuesday or not, he is do back on Wednesday and Thursday as well, to receive more chemo. The same will be repeated the following week minus one of the heavier drugs, which should make it a bit easier for Jordan.In honor of Jordan going bald from chemo, Shawn decided to surprise us all and came home with a shaved head. What a great dad he is! He didn't want Jordan to feel alone. There's nothing he wouldn't do for his boys. We are so lucky to have him! Shawn lifts our spirits everyday helping us to remain positive.

This weekend Tristen has a baseball tournament that will keep us busy and keep our minds off of what next week may bring. Prayers will be needed for us...we hope the hospital stay will be short and that Jordan will not get too sick so that all four of us will be able to be together for what is one of the most important holidays...Jesus' Birthday!!

Jordan Is Home!!

2009-12-13T21:34:00.000-08:00

Jordan came home Saturday and it couldn't have come soon enough! I don't know how we could have tolerated another day in there. The fevers finally stopped after he was put on a third antibiotic and the pneumonia that started in the left lung has since moved to the right lung but thankfully it is a mild case, so they gave us the pass out!

I can't even dig deep enough to find the words to describe the despair that our family endured staying in the hospital this pass week, it's something that the four of us just can't handle anymore. I'm sure it's due to what we experienced in the beginning with Jordan. Any time the four of us have to be separated now just seems unbearable. It is as if we've stopped living and time is standing still.

BUT, thankfully we serve a God that can turn a dark situation into a good one. Where there seems to be no hope, he can turn it around. Where fear may consume you, we can as hard as it may seem, no matter what our circumstance, turn our fear into FAITH by not looking at the situation but at the outcome. This week our joy was stripped away...and I say that truly for Shawn, Tristen, Jordan, and myself...so it will be my mission to find that joy again for our family. I am going to start in the book of Philippians in the bible, it's all about Joy, and start speaking life and happiness back into our family again.

I don't know when chemo will resume, we are do back for an evaluation and more blood work on Thursday, so I'm sure we will discuss the plans for chemo then. I'm thinking the following week but who knows, at least we get a break from anything heavy this week.
I'm so glad we took the opportunity and went to Knotts Berry Farm on the Sunday before Jordan was admitted. The hospital gave us tickets and we were able to go with my sister and brother in law, Gary and Sherrie, and with Jordan's cousins, Joshua and Natalee. Jordan had a blast, he was feeling great and went on every roller coaster and spin ride there was. He went on the Ghost-rider...three times!! Jordan is defiantly a thrill seeker and didn't even get sick once. Me...the second ride did me in and I was done for. I got so nauseous and sick, I had to take one of Jordan's pills he takes after chemo. My sister and I then decided to hang out at Camp Snoopy with my four year old niece and I couldn't even look at the rides, let alone ride one, but thanks to his pill, I was better towards the end of the day. I know crazy...right, I was the joke of the day and gave everyone a good laugh!

So...soon we will find that happiness again, just like the happiness we had at Knotts Berry Farm. It may take some time for us to bounce back, but we wont give up, even when the going gets tough. This is when I say...Thank you Lord for catching every tear and knowing when we can handle no more.

Chemo Postponed

2009-12-10T07:52:00.000-08:00

No chemo for Jordan this week, it has been pushed back. Monday evening Jordan was admitted to the hospital for a fever that kept on raising. After listening to his lungs and doing a chest x ray, it has been determined that he has a mild case of pneumonia in the lower left lung. He was immediately started on two powerful antibiotics that cover a wide spectrum of bacteria infections and treats pneumonia. As of last night, the fevers have not let up and only break with Tylenol. He is not feeling sick nor showing any signs that would have been a red flag to us, only the fevers. We are also waiting on blood cultures that take up to 48 hours to determine if there are any bacteria infections in his body, for example a blood infection due to his pic line. Once nothing shows growth on the cultures for three days, we may be able to go home after another chest x ray is done proving the pneumonia is clearing, and if the fever stops. There are a number of reasons for the fever, it may even be viral that antibiotics can not help.

We are looking at the earliest possibility of coming home being Friday, and we are counting on that!! Shawn, Tristen, Jordan and myself are not ready for any hospital stays to say the least. We will keep you posted.

A Wonderful Thanksgiving!

2009-12-05T13:11:00.000-08:00

This Thanksgiving our family genuinely had something to be grateful for, as you can imagine it was an emotional one, but with happy hearts. Jordan didn't even throw up once from his chemo the day before. I believe seeing family really brought his mind to a happy place, not to mention we were able to go on our annual trip to the desert with many other family members to ride. Jordan actually rode his quad and loved riding his cousins dirt bike. He did really well for a kid being hit with chemo, we were impressed. It brought back some normalcy in his eyes...there is life after leukemia!

The next round of chemo will be a day earlier than expected. Jordan is do back this Tuesday, he will be admitted to the hospital for a spinal tap and he will also receive 4 other chemo medicines. We will stay in the hospital, hopefully for a short while, depending on how Jordan responds. This is a heavy round that not only consists of medicine given through his pick line, but of taking chemo pills as well. After Tuesday, Jordan will pretty much receive chemo consistently up until approximately December 30Th. If everything goes according to schedule and there are no delays, the aggressive part of therapy could officially end at the end of December and once his counts raise back up, he can start the maintenance phase!

So many people have been commenting on how much of Jordan's hair has been growing back and how good it looks. Today however, we noticed it all over his shirt...they warned us it would start to fall out again. Thankfully, he seems not to care one bit. His weight is at the highest it has been since he was first diagnosed, he weights 63lbs! They continue to do blood work weekly and all seems to be coming back looking as well as can be expected. His spirits have been wonderful and we are seeing his goofy personality come back everyday. We do have some heavy rounds coming up in the next two weeks, so please remember us in your prayers, not only for Jordan but for his big brother Tristen, this takes a toll on him as well, especially with Christmas being so close and us having to be in the hospital and at the doctors so much.

On a much happier note, Jordan is almost done with the aggressive part and that's what we keep our eyes focused on...we never thought we'd see this day!

2009-11-24T21:11:00.000-08:00

Thanks to all that came out to the garage sale and supported Jordan's Cause. It was a huge success! Thank you to the generous people that donated money without buying anything at all and to the people that donated items to the sale just to help. Jordan was well enough most of the weekend to be there and meet some of his faithful supporters.

Jordan received chemo last Wednesday and is do back for a repeat this Wednesday. The effects of last week's chemo definitely kicked in, but not as bad as I've seen it in the past...thankfully. Come Saturday, he was pretty much back to himself. We should know what to expect with tomorrows chemo now and it seems he should be able to enjoy Thanksgiving somewhat. We will just have to be on top with the nauseous medicine. I think just being with cousins he hasn't seen in a while will lift his spirits and hopefully he will be distracted from feeling sick (at least that's what I'm hoping for). The next day back will be December 9th and it will be big, so we will definitely take advantage of the time off.

This Thanksgiving, I give thanks to LIFE my son has, when I think back to what could of been, my prayers instantly begin...giving thanks to God for his miraculous favor he had on Jordan's life and still has. We will never forget the MIRACLE that was given to us!

Thank you all for your continued support and prayers. May you all have a wonderful Thanksgiving.

2009-11-17T20:50:00.000-08:00

Jordan received chemo this past Wednesday, it consisted of a spinal tap and when they are in there pulling the fluid from the spine, they also inject some chemo medicine. Once he came out of the anesthesia, we went back to the room where he received two more chemo medicines. After an eight hour day, the last thing was to change his pic line dressing and like always they don't like the rash they see, so once again we are changing how we apply the bandages and now switching to iodine to clean it and have to now change the dressing every other day rather than once a week. It seems to be helping, his rash is much better.

Unfortunately the throwing up started that evening while we were at home. The nurses always give him dose of zolfran before we leave for the nauseousness but it only lasts so long. When Jordan is sick like this Shawn and I take turns sleeping on the couch with him and pretty much stay up the entire night. We do find it frustrating though, because its very hard for Jordan to keep any of his meds down when he just vomits them right back up. We wish we could take the medicines home with us and give them to him in the pic line like the nurses do. It would make things so much easier! We also give Jordan ativan and benadryl when he is so sick and vomiting, this is recommended by the doctors, to relax him and make him sleep. When he can keep these all down, it does seem to take the edge off.

This time around, Jordan did not throw up as long but seemed to stay sick longer with laying around a lot and sleeping more. He finally started to feel better on Sunday. We are due back again this Wednesday for more. Thankfully, no spinal tap, he will get two chemo meds at the doctors office. The next treatment after that will be the following Wednesday which will be the day before Thanksgiving...yes, we are all bummed!

For Jordan's Cause, we will be having a garage sale at my sister and brother-in-law's house this Friday, Saturday and Sunday. Their address is 35275 Wildwood Canyon Drive in Yucaipa. The nearest cross street is Bryant. All you garage sale shoppers...come on out!

Lastly...When Jordan was sick on Saturday with no life in him and feeling his weakest, I found the perfect bible verse, 2 Corinthians 12:9 and it talks about God's power working the best in our times of weakness. When I read this to Jordan, it brought tears to both of us, that verse was exactly the verse we needed to get us through that day. I'm so glad I found that seed to plant in Jordan's mind and heart, it helped reassure us we are not facing this battle alone...even in our times of weakness.

A Glimpse Of The Old Jordan

2009-11-09T19:54:00.000-08:00

This past weekend, we were able to enjoy Jordan the most we have in a long time. The four of us were able to get away and stay at a campground with two other families in Temecula for Tristen's baseball tournament and yes...he was the bat boy. If it puts him on a baseball field, he'll do it. Jordan is as eager as ever to be playing ball again and being the bat boy just draws him closer to the field.

The break that Jordan has had from chemo has done wonders for him! His hair is growing back, his voice is coming back, his strength is coming back, his personality is coming back, and he's eating more than ever! For the first time, I'm finally seeing it...a glimpse of the old Jordan! I've been eagerly waiting for it and it brings so much relief to see that it can and will happen...I can't wait until he's back, fully restored and even better than ever!

We do however, start up an intensive phase this Wednesday for 62 days. It, like always, begins with being admitted to the hospital for a spinal tap along with other chemos. The doctors feel this phase (hopefully) can be done without any hospital stays overnight. This is a big deal to Jordan and us, considering we've had our fair share of staying in the hospital...we strongly hope those days are behind us.

Jordan has loved this time off as he has been able to be somewhat of a normal kid again. He was able to ride his scooter and actually play ball this weekend with his brother and buddies he camped out with. His Grandpa Henry and Grandma Tina were even able to come and stay one night with us.

On Sunday night we picked up the bike he won from his school, thanks to Mrs. Matlock, and on Monday he was getting back into his old groove of riding and jumping his ramps (taking it cautiously of course). He loves his new bike and it will be great for strengthening his leg muscles.

Jordan currently weighs 60lbs! This is the most since he left the hospital after his initial stay in July. We hope and pray this next phase will not set him back much. He is very much aware of the upcoming chemo and just goes along with it. I've got to hand it to him, he's a trooper all right. Whenever people ask him, "How are you doing?" he always responds with "Good" or he gives a "thumbs up". He never really lets on that this is hard for him. When he does have his bad days, we just reassure him this will all be over soon and life will get back to normal. He feels like sometimes it won't, because in his mind three years of maintenance therapy seems forever. We just keep comforting and reassuring him.

Jordan would like to say, "Thanks to all who keep reading his blog and thank you for everything that you've done for me."

In closing, please remember us in your prayers, as we really don't know what the next couple of months will bring. We've just got to get Jordan through these last stages of the heavy chemo.

A Welcomed Break

2009-11-02T22:32:00.000-08:00

This past week we have had a nice, well welcomed break from chemo. Jordan only had chemo on Monday and Tuesdays chemo was canceled due to a reaction he had from the injections in his thighs. I am proud to say this phase is finished.

We have an appointment to meet with doctors this Thursdays to discuss this last phase of Jordan's aggressive chemo therapy treatment. Praise God!! I never thought I'd see these final days approaching, although I do believe this final phase will last all through the holidays.

Jordan is doing pretty well right now, with the exception of his low white blood count. His coloring looks pretty good and his spirits are great. He has been able to do things that keeps him busy and entertained. When he is felling well, it brings much relief to all of us, having days of somewhat normalcy reminds us of what living like a normal family is like once again.

I want to say thank to all the continued prayers that go out for Jordan. I have people telling me continuously they're still praying...it's good to know Jordan has not been forgotten as we still are in a fight. These prayers have lifted us up during days when we as a family have been at our lowest.

Once I get more details regarding this phase on how the doctors are going to approach this...I will defiantly let you all know.

God Bless

Jordan - Bat Boy!

2009-10-25T21:19:00.000-07:00

This weekend was much more enjoyable than last weekend for the Macias Family! Since last weekend's chemo treatments, Jordan has finally recovered, making it a weekend full of baseball.

Jordan was the bat boy for his brother, Tristen's traveling baseball team on both Saturday and Sunday. The minute I saw him pick up the first bat and jog out on the field, I must say...brought tears of much satisfaction and joy. It made me remember when we first brought him home from the hospital, he could barely walk, let alone jog. Jordan being out on the field and being apart of the team (even in their huddles) made me realize that ALL things are possible.

When Jordan is feeling well from the side effects of chemo, he gets stronger and stronger in all areas. He is more than ready now to be back on the baseball field playing once again. Soon this phase will end for this particular treatment, than we only have one more aggressive phase before he is on the maintenance phase. I can only hope, it won't hit it hard and set him back.

Friday morning, Jordan was one of four 4th graders at his school to win a bike in which Mrs. Matlock entered his name for the entry. He was able to go up in front of the school and see friends, teachers, and parents who may not have seen Jordan in a while. This made Jordan really happy, plus any chance he gets to go to school makes him so excited.

Unfortunately, we are due back Monday and Tuesday for another round of chemo. It is a repeat of what he's been having and thankfully, no spinal tap is due.

Jordan easily gets bored at home not going to school and playing sports, so this weekend was much needed to recharge and reset his mind. If there's, one thing I noticed about him, he's strong and he's a fighter.

He has told me before he is stronger than me which I know has truth to it. The other day, he was messing around on the computer and he just kept on writing over and over again: Jordan is strong, Jordan is strong. He probably wrote it 40 times...we should all take lessons from him. I know I should.

More Chemo

2009-10-19T21:04:00.000-07:00

Jordan had more chemo on Friday and Saturday. On Friday, Jordan was admitted into hospital for another spinal tap along with chemo inserted into his spine during this procedure. While he was asleep for the spinal tap they also inserted another pic line in the opposite arm. The surgeon thoughts still remain the same and he feels Jordan is still not ready for the port in his chest yet. Hopefully, when we get to the maintenance phase, possibly around February, we can start this discussion again about the port.

We had to go back to hospital on Saturday for more chemo, this time two more injections in each thigh. Of course, all side effects kicked in by Saturday night and his eating stopped. It's now Monday morning and I can see that Jordan is starting to come around very slowly.

For all you prayer warriors out there - while yes, we need prayers for the leukemia to stay in remission permanently and for weight to come on, we also need Jordan to be protected from the aggressive flu season that is upon us. I am stunned with how many families have been hit so hard with the flu already. Jordan cannot afford to get anything right now, especially with his immune system so suppressed. He needs protection in all areas.

Thank you to all for your continued support and prayers, they are so needed right now. More than you'll ever know.

It's Tough

2009-10-11T11:04:00.000-07:00

A lot of people have been asking about Shawn's job and fortunately, he got hired on with the new company. Most importantly, the medical insurance stayed the same and we were able to stay with Kaiser, which was huge because we did not want to switch with Jordan being in the middle of treatments.

People ask me as well, how's Tristen doing ...He has chose to keep his thoughts private from the blog right now, and I told him that's OK. Often I refer to him and his brother as two bookends - they don't work without each other.

Also...many people ask me how I am doing and I respond with my famous words, "I'm hanging in." I think as a mother, it hits you worse. I have good days and bad days, it seems more bad... and to be honest with you, most days I feel like I don't even want to get out of bed and face my day. But thankfully, I have a wonderful support system with great friends and family and a wonderful husband that motivates me and encourages me when I think I can't do it. He is defiantly the back bone of our family.

I don't do a lot of research on leukemia, I simply choose to do my research in the word of God. I lean on the Lord's report and not the report of the doctor's. I can say that when we go in for chemo now, it's a bit easier. I guess you say I've accepted it. But before, at the beginning, it literally made me ill.

When we lost my sister, Tami, to breast cancer, when she only 37, I thought OK...our family has now dealt with the worst thing possible, this has got to be it for us with our heartache. Well, I was wrong, I'm learning that life is not easy...It's full of ups and downs, laughter and tears, joys and heartache, achievements and disappointments. Right now for us, I have to believe this is just a season we are in and life will eventually get back to normal. My niece, Candace, tells me..a new normal now.

I often find myself looking through old pictures of Jordan...the ones with the shaggy hair, ones on vacations, him playing baseball, and ones with no scars on his neck and face from the echmo and ventilator. I don't know if this is good therapy for me or not, I often end up in tears but all I can say is...I keep going. You have to deal with what you've been dealt. I lean on the strength of the Lord and on his mercy and grace he gives everyday.

So, you see my Friends...I'm hanging in. No one said life would be easy. I defiantly look forward to the brighter days ahead, I just wish they were sooner rather than later.

Jordan Tolerating the Chemo

2009-10-07T19:51:00.000-07:00

Jordan had chemo on Monday and Tuesday of this week. It is at a lower dose than the last chemo treatment but in all actuality it is supposed to be higher. Jordan has such a sensitivity to all the medicines used for the chemo, that the doctors modify according to the patient and their needs. They really do work to make their patients as comfortable as possible. I must say we have wonderful doctors and nurses that care deeply for Jordan. They love him, they are always humoring him, and want the weight to come on just as much as us. (Not to mention, they counsel me all the time!)

This time around, Jordan has seemed to not throw up as long - I'm sure it's due to the decreased chemo amount. His eating had decreased to nothing but we push the liquids and Popsicles non stop. He did start eating a bit this afternoon which is always a huge relief to us. My goal was not to make another trip to Fontana for the IV fluids and nauseous medicine. The going back and forth can be a bit challenging. His energy is definitely not there, he just lays around a lot and can not have his hour of school or even mess around with this brother. Hopefully tomorrow he'll feel better and his teacher can come and get his mind of the sickness.

Jordan always gets pale and gets the dark circles under his eyes during this time. He didn't see much sun this pass summer so he seems extra pale to me, I'm used to seeing him with that golden sun kissed tone, man...the day I can see that again!

His pic line mysteriously came out on Monday, so after a few x-rays and our second trip to Fontana that day, it was determined to remove it. The doctors will now discuss once again if it may be time to have the port surgically inserted into his chest. This would be better all the way around for him. We need to pray that the mass is small enough to do so, if not they will put another pic line in. His poor arm really needed a break from this, it had a pretty bad rash on it and it is already looking so much better. Maybe this is a blessing in disguise.

He made me happy this evening, while I was making potato cheese soup for dinner, he got up from the couch and asked if he could cut the carrots and potatoes and add to the soup. I thought he must be feeling a little better. You see, he's got a lot of time on his hands and watches a lot of the cooking channel...he thinks he a chef! That's OK, I'll take it! I love every moment I have with him and my family!

Family is so important! Enjoy your family, love on your family and most of all enjoy this upcoming fall season!

A Much Better Week!

2009-10-03T20:32:00.000-07:00

Thankfully all is much better in the Macias home! Tristen is feeling well and back to school and Jordan is much much better since the last dose of chemo. No more throwing up and he's EATING!

Unfortunately he's back down to 54 lbs. Last week just really socked it to us. No chemo this week, although we did have to go to the doctors in Fontana twice for lab work and to change the dressing on his pic line. He seems to be having some sensitivity to the dressing, after all, his skin has not had a break from bandages and tape since June... so the nursers are trying some different techniques for some relief.

Jordan had the opportunity to go to an Angels game this week, he totally loved it and they won which makes it even better! Jordan indulged on a hot dog, pizza and tons of sunflower seeds. He had a great time with his Grandpa and Uncle Gary!

We are due for more chemo on Monday and Tuesday. We just try not to think about it until then, but believe me, my prayers have already started. The focus will be to enjoy the weekend only!

Thank you to everyone for your continued support and prayers. In our house, we seem to never get a break from this, it feels like Shawn and I are constantly carrying this burden on our shoulders. We welcome the day when we can look back on this and praise God for carrying us through.

If you find yourself struggling, the only thing I can say is tomorrow is a new day, don't give up, God won't give us anything we can't handle.

Chemo Has Hit Hard

2009-09-24T14:03:00.000-07:00

Jordan is not doing so well after his last chemo treatments. He has been sick vomiting and not eating since Tuesday afternoon. We were at the doctor's office yesterday trying to relieve him of these symptoms but it only took the edge off. We were lucky enough to come home in the evening, however he just stayed the same. We will give it some time to see if today will be the turn around day for him, if not the doctor wants to admit us and start the IV fluids and nauseous medicine once again.

They will also start TPN which is basically food that goes through his veins which consists all the nutrients and fat that he needs to carry him through a period of not eating. Regular food going straight to his stomach would naturally be the best. This will all be based on if he can keep down his fluids and food today. So far, having a bit of luck, lets keep our fingers crossed. Jordan does not want to go back in the hospital, but we will if this will get him better sooner.

His brother Tristen has been home sick since Tuesday with the stomach flu and fever. This is want we were afraid of. Needless to say, this had not been a easy week for our family. We have sent Tristen over to his aunt's house to avoid spreading any germs but have let him come home at night keeping him in different rooms from Jordan. It's very hard when you want to nurture your sick child back to health and comfort them, at the same time not trying to spread the germs to the other one battling cancer and being hit with chemo to where his immune system is so low.

Shawn and I are trying to stay strong as we always look back to the miracle that Jordan is here with us now and we are a family of four again. We've been asking ourselves why us...this is not fair that little Jordan has to endure this. It really hit me hard last night when I saw tears rolling out of Jordan's eyes after he had fallen asleep but than I realized there are many people out there battling this sick disease of cancer.

I know it's not fair...you just gotta hang in there, hold on to your faith and know that God is always holding us in the palm of His hand.

2009-09-22T08:10:00.000-07:00

After having a week off of chemo, Jordan went in for some more yesterday. It is actually a repeat of what he had a couple weeks ago. It consisted of two yesterday (one that will be at a higher dose than last time) both by a push. In the doctors words, "This is an aggressive disease so we need to treat it aggressively."

Today will be two injections given in each thigh muscle. Thankfully, we did not have to be admitted into the hospital last time we received this. Jordan did get very sick with throwing up and not eating or drinking for a couple of days but we were able to control these symptoms by a doctors visit with IV fluids and nauseous medicine through his pic line. He did get very dehydrated and unfortunately lost a couple of pounds. This may very well happen this time around especially with the increased amount. I have to keep in mind that he is stronger now and can hopefully tolerate more.

Please keep the prayers coming, we are still in a battle everyday. As of today Jordan almost weighs 58 lbs.

2009-09-10T20:59:00.000-07:00

**unless otherwise noted, these updates are coming directly from Melissa...

Jordan had chemo on Tuesday and Wednesday of this week. On Tuesday we were in the hospital for another spinal tap along with three different chemo's. Thankfully, he did not get sick initially, so we were able to go home and not stay the night.

On Wednesday, Jordan had another dose of chemo, this time two injections in each thigh. He was such a trooper and didn't even shed a tear. (We had just heard a verse on the radio talking about being brave and having courage, I'd say Jordan definitely had these that day). These types of shots do normally hurt, that is why we have to apply a numbing cream to the area an hour before. On Wednesday evening Jordan started to feel the effects of chemo and began throwing up. It has continued and has not stopped. His appetite is gone and we're lucky if he keeps liquids down. Hopefully tomorrow he will start to feel better or a trip to the doctors office might be inevitable.

Jordan has continued to do his home school program with Mrs. Smith even though he does not feel the greatest. His teacher says she admires him for this. He really is hanging in there despite the way he feels. We are not due back for chemo until Monday the 21st. This will give him just enough time to recover and then they will hit him with some more.

The mass in his chest is still there and is the size of a lemon, so the surgeon feels its best to wait a couple more months to see if the chemo treatments can bring it down more. The surgeon seems pretty optimistic after seeing the initial CT scan when Jordan was first diagnosed, remember it was inside his entire chest cavity. So...the good news is that it is shrinking or it may just be dead cells that need to dissipate over time.

Please continue to pray as we don't need Jordan to stop eating and loose more weight. It's a very trying time for our family and we are so very thankful for the support of the community, family and friends.

God Bless you all in whatever struggle you may be facing. It's nice to know we can always lean on God no matter the circumstance.

2009-09-03T21:39:00.000-07:00

Thank you to everyone for your continued support and prayers. They are obviously working because Jordan is doing much better!

We were under the impression that a brand new phase of chemo was to start this week but it should continue next week. This will allow Jordan to have a break and remain feeling well. This is great because this means no chemo this week allowing white blood counts to recover. Jordan welcomes this!!

Today we have an appointment with the surgeon to discuss putting in a port and removing the pic line in his arm. A port is really what was wanted from the beginning but with the mass so big in his chest it was too risky to be put under for surgery. Now that the mass appears to be smaller they are hoping that next week when he is put under anesthesia for a spinal tap, they can also surgically input the port and remove the pic line. A port is used for administering all of Jordan's chemo treatments and blood work. It is under the skin on the chest so this means shower's will be easier and he can swim. The main thing is there is less room for infection with the port and will be much easier to take care of. Whether or not Jordan is not ready for this surgery, chemo will start up again next week - continuing for 41 days with this particular phase. Prayers are very much needed to get him through this time, as you all know chemo is very hard on his little body.

Last week we had the opportunity to go to Big Bear for four days. Jordan held up pretty well. It was beautiful up there and we were able to go on the boat and enjoy the lake. We fished, ate, relaxed and just enjoyed the breath of fresh air that we all needed so badly. Jordan's cousin, Candace came up for one night. She really is the medicine that Jordan needs. He has become so close to her during this time and she can make him feel better and put a smile on his face no matter how sick or sad he may be feeling that day. Thank you Candace (Wally) for being there for your little cousin!!Legoland...a few weeks ago!

More updates to follow...

2009-08-26T07:55:00.000-07:00

This update comes from Melissa:

Jordan had chemo yesterday, it was a light dose so it should not effect the way he feels to much. His voice is getting stronger, but he still sounds horse and talks at a whisper level. Hopefully in a couple more months his voice should resume back to normal. This is common because he had the ventilator in for so long, not to mention the NG feeding tube - which by the way has been removed for the time being because it was clogged. Hopefully it will not have to be inserted again if Jordan continues to eat and gain weight. Jordan has gained four pounds since being home for the hospital which puts him now and 54 lbs. We'll take what we can get!

Legoland was a huge success! Jordan did great the whole day and used his wheelchair. The smile that I saw on Jordan's face will never go unnoticed again. That day is a day we will never forget. There are things in life that we look at differently now. I know life is way too precious to take it for granted. I counted my blessings through out the entire day, thanking God for the second chance at life he has given Jordan. I caught myself just staring at Jordan often, thinking what a miracle he is.

This whole experience makes us put a lot into perspective now...life is too precious, you never know what tomorrow will bring. So give those extra hugs and kisses to your kids, you can never give them enough or too many!

A Message from Melissa

2009-08-19T15:08:00.000-07:00

After talking with family and friends lately, we've realized that people are under the assumption that Jordan is doing much better. While all the chemo treatments Jordan has received thus-far are working and putting the leukemia into remission, we are still facing another serious battle. That battle is his weight.

When Jordan was at Loma Linda, their focus was saving his life in which they succeeded. However, during that time he lost an extreme amount of weight. Weight that is usually lost during aggressive chemo treatments. Jordan does not have any type of reserve at this point not to mention muscle mass. That is why Jordan ended up in the hospital for a week recently because chemo knocked him over the edge and his body could not handle it. The doctors are referring to Jordan as being in a worst state than an anorexic. His body is so malnourished and depleted that any infection to his body or virus could result in the worst possible outcome regardless of the leukemia. So the doctors goal at this time is for Jordan to eat, eat, eat and gain as much weight as possible. The family is trying to remain optimistic at this time and trusting God has a plan. After all, his life was already spared and they are not giving up at this point. So please continue to keep little Jordan in your prayers while believing that the weight will come on quickly and stay on him.

On a much lighter note, today Jordan had a light dose of chemo by a quick push that should not make him feel sick to his stomach or knock him down too much. He will have the rest of the week off and return next Tuesday for the same dose. His doctor, Dr. Horvath was so excited to see a smile on his face today that she immediately was on the phone making arrangements for Jordan to receive Lego Land tickets. The doctor says at this time his counts are high enough to enjoy a day at a theme park (cautiously). Doctors orders! It's all about yielding to Jordan and putting a smile back on his face. According to the doctor, "Everything has been stripped away from his nine year old life. Baseball, school, swimming, summer vacations, friends etc..." So, the next two weeks should be very good for Jordan.

He started his 4th grade home school program this week. One hour of school will count as one school day for him. (One good thing out of this, right!) Jordan has the privilege to be home schooled by his 2nd grade teacher, Patti Smith, who by the way is wonderful with him. We thank you ahead time Patti for this, one less stress off of the family!

The family would also like to send out some "Thank You's":

Thank you to Courtney Taylor and Yucaipa Little Theater plus their cast and crew that came out on a special night to perform the play "Oliver" and raise funds for Jordan Cause! The family was touched that the YLT pulled together with such a large cast and crew and gave all proceeds to Jordan.

Also...thank you to Ann and Eric, owners of Reps4Life. On the One Year Anniversary of their fitness gym in Yucaipa they donated to us as well. The Independent All Stars Cheerleading Team was out washing cars all day for Jordan's Cause...Thank you to all! The community has been wonderful and so supportive!

2009-08-12T15:42:00.000-07:00

Jordan came home from the hospital yesterday! He ended up staying in all of last week. He just finished a really rough week of chemo. The doctors had him on all sorts of medications to help him with sickness. They even flew some in from back east!

Jordan really turned around on Sunday...he started feeling better and eating a little more, however, he needed another spinal on Tuesday, so instead of going home and having to be readmitted, the doctors kept him. He is very happy to be home, to say the least!

He will be going in for chemo every day this week.

Thank you for your continued prayers for he and his family!!!

2009-08-06T08:34:00.000-07:00

Last week at the Son Rock Kids Camp, the YCC Vacation Bible School, Jordan was the focus of attention! The camp raised money for Jordan's Cause. Along with those amazing efforts, the children attending were introduced to Leukemia and what it is. Candace and Jamie were able to go speak to them and tell them Jordan's story. The kids made signs and get well cards for Jordan. Friday night was the end of the week family night celebration. Shawn and Melissa were able to attend, as was Jordan! The family was so touched by the generosity of everyone involved! A huge Thank You to the Son Rock Kids Camp from the Macias Family!

The last few weeks Jordan's counts have been up so he has been able to get out a little more. He was able to go out to dinner and to attend the circus among other things! He is now repeating the same chemo cycle he had last month. He had a heavy dose of chemo on Tuesday. It made him so sick that he was admitted back into the hospital on Wednesday. They have him on meds for his nauseousness. They are also hydrating him. His chemo included a spinal, and chemo in pill form. Today he will be getting more chemo and a blood transfusion. He will be going home as soon as he is feeling better. The next two weeks will be very rough on Jordan, so please continue to keep him in your thoughts and prayers!

Quick Reminder...Oliver this Thursday!

2009-08-04T08:58:00.000-07:00

The cast of Yucaipa Little Theatre’s “Oliver!” has scheduled an additional benefit performance for Thursday, August 6, 7:30 p.m., with all proceeds going to help Jordan Macias!To attend this special performance, please call 909-790-1884 for a reservation as the theatre has limited capacity seating. Tickets are $10 for adults and $8 for senior, students, and children. Family tickets are $25, and groups of eight or more may purchase tickets for $6 each.If you cannot attend the August 6th benefit performance, “Oliver!” is playing at 7:30 p.m. on July 31 and August 1, 7 and 8. Matinee performances are at 3:30 p.m. on July 26, and August 2 and 9. A donation jar will be available for Jordan’s Cause.

2009-07-28T19:53:00.000-07:00

Jordan had a small dose of chemo today...it wasn't too harsh. His blood counts are good. He'll get a spinal tap and higher doses next week.

Also, a huge thank you goes out to Sherrie Williams, who is with the San Bernardino County Sheriff's Office, for organizing the Tip A Cop at Jose's on Saturday. Shawn and Melissa were actually able to go that night and have dinner! It was the first event for Jordan they have been able to attend! Everyone did an amazing job!

Thank you to everyone who is doing so much for Jordan and his family! Please continue to keep them in your prayers!!

Yucaipa Little Theatre Helps Jordan Macias

2009-07-27T21:43:00.000-07:00

The cast of Yucaipa Little Theatre’s “Oliver!” has scheduled an additional benefit performance for Thursday, August 6, 7:30 p.m., with all proceeds going to help Jordan Macias, a 9 year-old Yucaipa resident recently diagnosed with T-Cell Leukemia.

"We heard about the struggle the Macias family has been through as Jordan fights this battle and wanted to do something to help,” said Ken Corona, President of the Yucaipa Little Theatre Board of Directors. “Everyone in the community has rallied around the family and having this special performance is the best way we can contribute.”

Jordan was diagnosed with the disease on May 27, 2009, and spent six weeks in the hospital as doctors worked to reduce a mass that was pressing on his heart, causing a collapsed lung and putting Jordan into cardiac arrest.

He was recently released and is facing three and a half years of intense chemotherapy. His family is staying with relatives while his home is being retrofitted in order to create a safe environment in which to recover. All material for this remodel has been donated by area businesses and the labor has been provided by volunteers.

His mother, Melissa, quit her job to care for Jordan full-time and his father, Shawn, is facing an uncertain future as the troubled economy takes its toll on the auto industry, his line of work for nearly two decades. Tristan, Jordan’s 11 year-old brother, has stayed by his brother’s side since his return home.

“Other fund raising events have been held by local businesses to benefit the family and we’re proud that we can do something to contribute,” said Corona. “Someone in the community remarked that Jordan is a little boy who turned a community into a family. We’re honored to be a member of that family.”

To attend this special performance, please call 909-790-1884 for a reservation as the theatre has limited capacity seating. Tickets are $10 for adults and $8 for senior, students, and children. Family tickets are $25, and groups of eight or more may purchase tickets for $6 each.

If you cannot attend the August 6th benefit performance, “Oliver!” is playing at 7:30 p.m. on July 31 and August 1, 7 and 8. Matinee performances are at 3:30 p.m. on July 26, and August 2 and 9. A donation jar will be available for Jordan’s Cause.

2009-07-23T23:11:00.000-07:00

Jordan has had a busy week! On Monday he went in for chemo. When he arrived, he had a 100.3 fever and was immediately admitted to the hospital. They held off on the chemo treatment and evaluated him for the rest of the day. They finally decided that the fever was caused by the heat outside and his walk into the hospital, and he was able to go home.

On Tuesday he went in for the chemo treatment he was supposed to have Monday. It was supposed to be administered in the Peds ICU Unit, however, there weren't any beds for him, so he was taken to the Peds part of the hospital with an ICU doctor to administer the chemo. The type of chemo he was getting does have the possibility of a reaction occurring. Usually this type is given in the thigh, however, since Jordan doesn't have any muscles in his thighs, he was given it by IV. It went directly into his blood stream and he had a reaction. He was treated for it and had to stay in the hospital over night for observation.

Wednesday he had a rehabilitation session scheduled at the hospital for his physical therapy. It was for nerves and muscles, among other things.

Reps For Life 1 Year Anniversary - Festivities to Help Jordan's Cause!

2009-07-23T22:07:00.000-07:00

Reps for Life will be having their 1 year Anniversary on Saturday, August 1st. They will be having a car wash from 11 a.m. to 3 p.m., a 50/50, music at 6 p.m. and a percentage of all new membership sales from that day will go to Jordan's Cause!

Every Thursday evening at 6:30 p.m. they will also be having a Christian Rock Band playing music on the patio outside of the gym. All donations will go to Jordan's Cause!

Softball Tournament A Huge Success!

2009-07-20T14:25:00.000-07:00

The first annual softball tournament turned out to be a huge success! What a great way to support and raise money for Jordan’s Cause! Despite smoldering temperatures, supporters showed their determination for Jordan that lasted from early morning hours until late evening.

The family would like express their deepest appreciation to the following for making this day possible: Lucy’s Restaurant, Toyota of Redlands, Regalado Family, The Big Cheese, The Olive Garden, Color Trenz, Rueben’s Promos, East Highlands Softball Club, Yucaipa Valley Water District, Rival Skate Shop, KCAL/CBS News, Yucaipa Calimesa News Mirror, Press Enterprise, Shell, Carl’s Jr., and to Eric (ICEMAN) for their donations. Also, thank you to the entire Macias/Guzman family, Caroline & Ben Humildad & family, the McGregor family, D.J. Rich & Denise, Ruben Reese, Frank Chavez, Jason Macias, Mike McCue and to all of their many friends and family that participated in such a group effort. Also, to all the softball teams who participated & to the winners of the tournament, team Ignite!

The family would like to say a special thank you to: Vince Delgado Jr., Andre & Monica Guzman, Uncle Ricky Macias, Ian McGregor and Shawn’s mom, Estella who played vital parts in coordinating this event.

Last but not least, Shawn would like to thank his little sister, Ann Marie Macias for all her time, effort and hard work in planning such a wonderful event. Her only goal was to raise money for the family but most importantly for her little “Jordie” that she loves so much. After all she was the one who nicknamed him “Jordie”. Ann Marie has blessed us not only financially but has been there for us through this tough time. Shawn says, “He’s so lucky and thankful for his little sister”.

May God Bless You All. Please continue to pray for Jordan as he has a long fight ahead of him.

Jordan's Story on the News!

2009-07-16T17:49:00.000-07:00

If you missed it, Jordan's Story might be reaired tomorrow morning on CBS 2 news between 5 and 7 a.m. Here is the link to the story on the CBS2/KCAL9 website!

http://cbs2.com/tv/softball.tournament.Leukemia.2.1088578.html

One Amazing Brother

2009-07-14T23:52:00.000-07:00

As you all know, Jordan is home now and is doing his treatment on an out-patient basis. What we all don't see, is what this means to his big brother Tristen. There are no words to describe how quickly Tristen has had to grow up through out this whole experience. He has had to watch his little brother and his very best friend in the entire world literally fight to live. The hardest part of all, he has had to watch this from afar...as he wasn't able to be with Jordan for most of the 6 weeks he was in the hospital.

Since Jordan has been home, Tristen has taken it upon himself to be at his side every second possible. He is the one sitting next to him during is treatments now. He is the one rubbing his back, holding his hand, and giving him the encouragement he needs. He can't leave the room, let alone the house, without making sure Jordan is ok. He has stepped up like not many boys his age would, and all because of how much he loves his little brother.

He was there today when Jordan started his next dose of chemo. He is there as he watches Jordan struggle to walk without his walker, and all the time he is encouraging him and helping him fight this amazing battle that the doctors still can't believe he is winning so convincingly!

So, while we all have Jordan in our hearts and in our prayers, let's not forget about is big brother Tristen, who needs just as much attention, words of encouragement, and words of praise...for he too is fighting this battle, just in a much different way!

Tristen, you are one amazing big brother...and Jordan is so blessed to have you!

First Big Outing!

2009-07-12T21:18:00.000-07:00

Tonight Jordan had his first big outing since being out of the hospital...and OF COURSE...it was to Tristen's All-Star Game! As Melissa put it, "he demanded and insisted that he was going!" He loved every second of it! The team even did a cheer for him! Unfortunately, the team lost by a run, but Jordan got to see his big brother play ball again and that was all that mattered!

He starts a new week of chemo tomorrow...so please keep him in your prayers!

Blood Drive

2009-07-10T10:23:00.000-07:00

Today between 11:30 and 4:30 the Blood Bank will be at the Calimesa Stater Bros. The church Jordan and his family belong to is Oak Valley Family Church. They have an account with the Blood Bank. If you would like to donate, you can request that your blood be credited to the church's account. That way if Jordan ever in need it will be available to him.

Thank you for your support!

He's Out!!!

2009-07-09T17:36:00.000-07:00

Jordan came home from the hospital yesterday!

After being there for 6 weeks and 1 day, Shawn brought Jordan home yesterday afternoon! He was greeted by family, balloons, and welcome home signs! Tristen is so excited to have him home!

The doctors can't believe how well Jordan is doing, and in such a short period of time! They have told Melissa and Shawn that he is the exception to what they usually see and expect! They have never seen a kid come back from as much emotionally and physically as Jordan has in such a short period of time! THANK YOU FOR YOUR PRAYERS!

Believe it or not, the doctors have told Shawn and Melissa that Jordan's Leukemia is in remission! While he still has the mass in his chest, they believe that it is of dead cells, not live ones. The continued chemo is to make sure of that. He is responding very well to treatment! The area of concern aside from the mass is his nutrition. He will be having home care and therapy, both physical and occupational. He is having to learn how to walk again. He is currently using a walker and a wheelchair, but he is working very hard. They have him on a high calorie/high protein diet. He is still on an NG tube through his nose, to give him bolus feedings. They are trying to increase them to help with his nutrition. He is still a little sick, but is hanging in there. The best feeding tube for him is a G-Tube, however, it would require surgery to insert it into his chest. The doctors can't risk putting him under anesthetic with the mass still in his chest.

Jordan is doing his chemo on an outpatient basis in Fontana. He went today for another dose, however, they don't do them over the weekend, so his next dose won't be until Monday. On his way home, they stopped at Mimi's. Jordan had a few bites of a BLT and a few fries! Shawn and Melissa kept asking him what he wanted to eat for his first meal home. He said Sushi...so they had Sushi on hand yesterday when he got home! He took a few bites here and there!

Even though Jordan's white blood cell count isn't too low right now, the doctors and family are asking that only immediate family be around him for the time being. The risk of germs is just too great. Jordan has come so far, but still has a long road ahead of him.

Thank you so much for your prayers on his behalf! Please keep them coming!!!

2009-07-08T23:44:00.000-07:00

Jordan had a good day today. He is eating a little bit more and is feeling better. He was able to walk around today with the help of a walker! His spirits are up and his physical therapy is going well. He has another dose of chemo tomorrow, as well as a spinal tap.

2009-07-06T23:18:00.000-07:00

Last night Jordan had a dose of chemo. He also received a blood transfusion, which they were hoping would give him more energy. He also was able to eat a little bit. Tristen was able to come for a visit, and Jordan enjoyed wearing his All-Stars cap for a while!

Today Jordan was able to walk 400 ft. on his own! He is getting stronger when he's not on heavy chemo. He only has one dose of it tonight, by pill.

Thank you for all of your prayers, please keep them coming!

Correction

2009-07-05T20:42:00.001-07:00

I have a correction to last nights post...the fireworks show that was recorded for Jordan to watch was from Redlands, but only bits and pieces of a show from 4 years ago. The show in it's entirety has never been recorded by Melissa's sister-in-law. Sorry about the incorrect information.

2009-07-04T22:17:00.001-07:00

Jordan still isn't feeling very well thanks to all of the chemo treatments he is getting. He is very tired, not talking much, and is sick. He has no appetite, and is mainly just drinking fluids. He has two more doses of chemo tonight, one in pill form and the other a push through his IV.

Melissa's brother and is family came down from Bakersfield to spend the holiday with Jordan and Melissa in the hospital. Jordan and Tristen are very close to their cousins. They brought their laptop which had videos the kids have made over the years of themselves to watch with Jordan. Every year Melissa's sister-in-law records the fireworks show at the U of R, so she put them all together so that Jordan could see a fireworks show tonight!

2009-07-03T23:29:00.000-07:00

First of all...Happy Birthday Tristen!!! Melissa and Shawn were both able to spend the day with him! This is the first day they have all spent together outside of the hospital since Jordan was admitted. Thank you to Wally for staying with Jordan!

Jordan had a rough day today. Yesterdays round of chemo made him very sick. He was nauseous most of the day, and they had to stop his feedings several times. He had no appetite and was back on the feeding tube. He also had a lot of Gatorade and ice chips. They had him on numerous medications for his nausea as well. He was really tired and didn't do any physical therapy today.

He had two more doses of chemo tonight, but they weren't as strong as the ones he had yesterday. Thank you for keeping him in your prayers, as each day brings something new.

2009-07-02T22:21:00.000-07:00

Jordan started his second round of chemo today. This one includes one spinal tap a week, and then chemo in different forms, and in different intervals. For instance, today he took his chemo in pill form and by IV...one that was a push and the other that was given to him over an hour time span. The doctors smashed his pill today and put it through his feeding tube, however, with how well he is able to eat more solid foods, they are thinking he will be able to swallow the pills in no time.

The spinal tap today was very scary for Jordan. He has had 3 others, but today was the first time he was alert with no type of sedation. He did great and it went well. Jordan is on round the clock medication for nausea, however, it is yet to be seen how he will react to this round of chemo.

This round of chemo will last for the next month, and then it will start all over again. The good thing about it is that it can be given to him as an out-patient. He is still in the hospital because of how sick he was to begin with. They haven't given any specifics as to when he will be going home, but at least it is a possibility! He is being moved to another hospital soon, the day is yet to be determined.

For those of you who have been asking, the Stater Bros in Calimesa will be holding a Blood Drive on July 10th to benefit Jordan's Cause. More details will follow soon!

Exciting News!!!

2009-07-02T02:00:00.000-07:00

Jordan can now eat real food! His first meal in five weeks was tuna, tomatoes with ranch, a roll with butter, and milk to wash it down! Wally was bringing him a chicken teriyaki bowl from Jack in the Box, at his request. He said "it's gonna be good!"

He is now able to walk around a little. He's taking baby steps to use the bathroom. He was able to take a shower yesterday. While in the bathroom washing his hands today he looked in the mirror and said "it's gettin' bald" of course meaning his hair. He's alright with it though.

He will have chemo and a bone marrow test tomorrow. No g-tube. They don't want to risk a collapsed lung while inserting the tube, so they decided against it for now (the mass is still putting pressure on his lung). The CT results still show the mass, obviously. They are looking to move him again soon, and are still looking for a good rehab center close by.

2009-06-30T23:23:00.001-07:00

The past two days have been busy. Jordan's bone marrow test came back good. The doctors would like to get a CT done to check the mass in his chest and and EKG to check on his heart, over the next few days. His next stage of chemo starts Thursday. It will last for the next two months. He will also have a weekly bone marrow test with this round of chemo. He will be getting a G-Tube inserted on Thursday as well. It is a feeding tube in his stomach, as opposed to the one he has in his nose right now. Jordan has started "talking" more. He doesn't have use of his vocal chords yet, but he can whisper pretty loudly and can be heard over the phone. Today he even did some arts and crafts.

Yesterday he was able to ride in a wheelchair to physical therapy. This is the first time in 5 weeks he has been out of his room, and the first opportunity he has had to see where he is. He is on the Peds floor now, so he has an ankle bracelet for security. He did really well at physical therapy, but was too tired to finish, so with about 15 minutes left, his therapist said he could be taken down to the lobby, just to see some of his surroundings. When they got into the elevator, the doors wouldn't close. Before they knew it, alarms were sounding and security guards were all over the place...Jordan's bracelet had gone off! (At least now we know those things really work!) After security interviewed EVERYONE, Jordan was back in his room undisturbed! Quite the excitement!

Once Jordan is home, he will need to go to a rehabilitation center to continue his physical therapy, so they are looking for one that is close!

2009-06-28T23:43:00.000-07:00

Today Jordan saw his physical therapist. The session went "excellent"! He still can't use his voice, and can't eat or drink. He will be meeting with a speech therapist and a neurologist tomorrow. The results from his bone marrow test will also be back tomorrow.

2009-06-27T21:39:00.000-07:00

Jordan had a rough day today. He has been throwing up a lot and has not been feeling well at all. They stopped his feeds for 3 hours to give him a break. They took a stomach x-ray to make sure everything is ok.

2009-06-26T23:47:00.000-07:00

Last night Jordan was moved to a regular Peds room! Thank you for all the prayers...please keep them coming!

2009-06-25T21:08:00.000-07:00

Jordan had chemo today. He is making progress each day. He's been sitting up for longer amounts of time by himself, among other things. There is a possibility that he will get to go home sooner than originally thought, but no promises. Please keep the prayers coming!

2009-06-24T22:51:00.001-07:00

Jordan was able to have 1 1/2 Popsicles today! His aunt also trimmed up his hair. Tomorrow he will have a spinal injection of chemo and a bone marrow test.

2009-06-23T22:56:00.000-07:00

Jordan was able to swallow 2 ice chips today. He is alert and watching TV. He is also working with a physical therapist on his vocal chords. They are encouraging him to use them through games. He has his next round of chemo on Thursday. They are doing a boost of chemo through a spinal tap, then they will do a bone marrow test. Jordan is still in a Peds ICU room. It is all decorated with baseball banners, pictures, and cards. Thank you for all of your prayers on his behalf. Please keep them coming!

Also, "The Green Frog Lounge will be hosting a 50/50 drawing at the end of June located at 27212 Baseline Ave, Highland. All proceeds will go to The Macias Family for Jordan's Cause."

2009-06-22T22:16:00.000-07:00

Jordan is making slow and steady progress. Today he sat up in a chair for 6 minutes. His physical therapist wants to see him sitting in a chair by himself for 20 minutes, twice a day. His progress will be determined by how hard he wants to work. He has good and bad days. He is starting to get frustrated because he wants to go home. He still isn't eating or drinking. Hopefully that will come soon.

On a side note, Salon Tranquility in Calimesa is supporting Jordan's Cause! They have green hair extensions, one of the Leukemia Awareness colors, available. All proceeds go to the Macias Family. They are also raffling off an amazing Spa Package! For more information, contact them at 909-795-6005.

2009-06-21T23:44:00.001-07:00

We got an update from Melissa tonight...this is all coming from her!

Tristen had his second visit in 4 weeks with Jordan today. They have never been apart for this long, so you can imagine how emotional these visits are, and how hard this is on both of the boys.

Another x-ray was done of the mass in Jordan's chest. It is still compressing on his left lung. This is one of the reasons Jordan is still in the Peds ICU. They are hoping he will be moved out of there in the near future.

Jordan is awake and functioning. He has been reading his many cards and get well wishes. He read one today from the kids at Calvery Chapel in Prescott, Arizona! He has also been playing his Game Boy! He is very hungry and thirsty all the time. This makes him pretty feisty!

Melissa also wanted to thank Candace, aka Wally, for dropping everything and spending the past 3 days with she and Jordan at the hospital. This move has been hard on everyone, and she couldn't have done it without her!

2009-06-21T21:01:00.000-07:00

A great picture of Jordan was sent out by text today...he was awake, wearing his Dodgers baseball hat, and his HUGE ear to ear smile! Our prayers are working! Thank you and please keep them coming! Hopefully we'll have some pictures for the blog soon!

Here are the Minor Dodgers receiving their First Place Medals at closing ceremonies yesterday!

2009-06-20T22:56:00.001-07:00

Jordan is at the new hospital and is doing ok. He is aware of what is going on, and is more alert with each day. He has been given swallow tests, however, hasn't passed any yet. Along with his chemo and treatment plan for his leukemia, he is also going to be starting some physical therapy to help him speak and swallow.

2009-06-19T22:08:00.000-07:00

Jordan was moved to a Kaiser Hospital tonight. He and Melissa went by helicopter.

Congratulations to the Minor League Dodgers!!! Jordan, Tristen, and Shawn's team won the tournament tonight! They defeated the Reds 15-8! Tomorrow is closing ceremonies at 10 a.m. at Bryant Glenn. The National League will have "Leukemia Awareness" Orange Rubber Bracelet Wristbands available. They have been personalized with Jordan's name on them...very cool!

2009-06-18T22:18:00.000-07:00

The doctors decided that Jordan wasn't ready to move yet, so he is still at Loma Linda for the time being! He had a busy day today...chemo, a CT, a chest x-ray to check on the mass, and a swallow test. He still can't talk, but is communicating better.

2009-06-17T21:54:00.000-07:00

Jordan will be moving from Loma Linda to Kaiser within the next day. He is still scheduled for a treatment of chemo tomorrow. He is looking much better and is more alert today. He even watched a little T.V. He can't talk yet, but does mouth words and whisper.

2009-06-16T20:04:00.000-07:00

Not much has changed since yesterday...Jordan is still off the ventilator and is doing ok! The doctors are increasing his calorie intake...hopefully he will start to gain back some of the weight he has lost. He is starting to lose his hair from all the chemo, but at least it seems to be working, the mass is starting to get a little smaller. His next round of chemo is Thursday.

2009-06-15T19:54:00.000-07:00

The doctors have decided to put a hold on the biopsy of the mass. They are going to stick to their original treatment plan. Jordan needs to get stronger, so they are starting to feed him more through his IV, as mentioned earlier, he has lost quite a bit of weight since he was admitted to the hospital. He is still off the ventilator, but the past two days have been a little rough. The mass is still putting pressure on his left lung so it isn't able to expand like it should.

Shawn, Jordan, and Tristen's team, the Minor Dodgers, won their second round tournament game tonight and will be playing in the championship game!

ALSO, A HUGE CONGRATULATIONS TO TRISTEN FOR MAKING ALL-STARS!!!!

2009-06-14T20:57:00.000-07:00

Jordan was taken off the ventilator around 2:30 this morning! Doctors haven't said if it for good or not, but he is off of it as of right now. They are planning on doing a biopsy of the mass tomorrow. There is a chance he might have to do some radiation, but that is still uncertain.

As you can imagine, this is a very difficult and frustrating time, as there are still so many unknowns. Please keep your prayers on behalf of Jordan, Tristen, Shawn, and Melissa coming. We know that God hears and answers our prayers! Please pray specifically for Jordan's progress and for inspiration for his doctors that they might know what direction to go as far as his treatment is concerned. Thank you so much for your support!

2009-06-13T22:57:00.000-07:00

First of all, thank you to everyone who participated in the Cut-A-Thon today! Don't forget, if you eat at The Fat Greek and mention Jordan's Cause, they will donate 10% of your bill! Monday is the last day!

Jordan had a pretty rough night last night, which carried over to today. He had an MRI and a CT done today. After the testing was done, his heart rate dropped to 44. It took the doctors awhile to get it back up. Melissa wanted to personally thank everyone from the Oak Valley Family Church for getting together and praying for Jordan today while this was going on. He has lost 7 pounds since he was admitted to the hospital, but he is hanging in there! The doctors hope they will be able to take him off the ventilator in the next few days.

On a baseball note, the Minor League Tournament started today. Shawn managed his team as Tristen and the rest of the Dodgers came away with a victory!

2009-06-12T22:41:00.000-07:00

Not much news to report today. They are still waiting for the results from the MRI. Thank you for all of your prayers on behalf of Jordan and his family! They are greatly appreciated! Please keep them coming!

A quick reminder...Color Trenz in Yucaipa will be holding a Cut-A-Thon on Saturday, June 13th! It is located at 31608 Yucaipa Blvd. All proceeds will go the The Macias Family Benevolent Fund! Be sure to stop by!!!

2009-06-11T23:33:00.000-07:00

Not much has changed since this morning. Jordan did have some x-rays done of his chest and an MRI today. He had a PIC Line put in...so no more IV's. He also had another round of chemo. His last bone marrow test came back clear, so he isn't in need of any donors at this time, which is a great thing! Since he is back on the ventilator, he is sedated, but not on a continuous drip like before. This time the medication is being given to him manually by the doctors and nurses. His chest is just too weak from the pressure being put on everything by the mass, which is why the decision was made to put him back on the ventilator.

A Small Step Back

2009-06-11T08:50:00.000-07:00

The doctors decided to put Jordan back on the ventilator last night, and so once again, he has been sedated. The mass in his chest is still crushing against his left lung, making breathing a little too difficult for him to do on his own. His breathing on his own was labored all day yesterday...as if he'd just run a marathon, and the doctors weren't comfortable with that. Jordan also has chemo today. Please remember to keep him in your prayers!

Cut-A-Thon

2009-06-11T08:49:00.000-07:00

Just a reminder...the Cut-A-Thon will be held this Saturday, June 13, 2008 at ColorTrenz in Yucaipa. All Hair cuts are free and donations will go to the Macias Family.

2009-06-10T19:50:00.000-07:00

As mentioned last night, Jordan is off all medication and is awake - well, he's still trying to wake up completely. He's been in and out all day. He's still not talking and his left lung still isn't working at 100% due to the mass pushing on it. Please no visitors yet, as he is still adjusting to everything that is going on. Thank you for all of your prayers! Please keep them coming!

More Recent Update...

2009-06-09T23:42:00.001-07:00

Sorry...lots of changes today...even though Jordan is awake and off the ventilator, he is on an apnea machine to make sure he is getting enough oxygen. The doctors didn't like the way his breathing was sounding when he was on his own, so they put him on this machine. It has been a very long and tough day for him, as you all can imagine.

THIS JUST IN...

2009-06-09T21:59:00.001-07:00

Jordan is awake!!! The ventilator is out! He has a sore throat and can't talk, but everything is looking good at this point! Thank you for your prayers, please keep them coming!

2009-06-09T21:32:00.000-07:00

The doctors have taken Jordan off his medication so that he can wake up! He has been moving around, trying to wake up, but he isn't awake yet. As soon as he is awake the doctors can take him off the ventilator! They just need to make sure that he is breathing on his own before they take it out. Hopefully it will be soon!!! Keep the prayers coming!

Keeping Our Fingers Crossed, and the Prayers Coming!

2009-06-09T12:02:00.000-07:00

There is a good chance that Jordan will get off the ventilator today and that the doctors will wake him up!

2009-06-08T23:07:00.000-07:00

Both chest tubes are out! Hopefully Jordan will be off the ventilator tomorrow!

2009-06-07T21:37:00.000-07:00

Jordan had a really good night last night! Today they removed his right chest tube and tomorrow they will be running some tests to see if they can remove the ventilator.

2009-06-06T22:01:00.001-07:00

First of all, thank you so much to everyone who participated in our Jose's Nights this past week! The turnout on behalf of Jordan's Cause was enormous!!!

There really isn't any new news on Jordan today. He is still on the ventilator and is heavily medicated. His next round of chemo will most likely be Thursday. Please keep the prayers for he and his family coming!

Don't Forget...

2009-06-06T00:25:00.000-07:00

Today is the last Jose's Day for Jordan! Eat at Jose's in Yucaipa! If you need a flyer, send an email to jordanscause@gmail.com. Thank you for your support!!!

2009-06-05T23:55:00.000-07:00

Jordan's bone marrow test and spinal tap came back clear! The doctors are very happy about this, however, his white blood cell count is very low. For this reason, Shawn and Melissa are the only ones allowed in Jordan's room at this time. He is resting comfortably tonight.

2009-06-04T21:52:00.000-07:00

Quick update...today Jordan had a bone marrow test and a spinal tap...no results yet. He also had another round of chemo.

2009-06-03T21:06:00.000-07:00

Thank you to everyone who supported Jordan by eating at Jose's today! If you haven't had a chance to make it over there, our last Jose's day is Saturday!

Jordan is off all of his paralyzing medication. He is sedated and is resting comfortably. The doctors can see his heart better in the x-rays, so that means the mass is shrinking! Please continue to keep him in your prayers, and thank you for all of your support!

Don't Forget...

2009-06-03T08:06:00.001-07:00

Quick reminder...Today is one of the Jose's Days for Jordan! Eat at Jose's in Yucaipa! If you need a flyer, send an email to jordanscause@gmail.com. Thank you for your support!!!

2009-06-02T23:10:00.000-07:00

It's the end of another day...and Jordan is still the amazing fighter that he is! Unfortunately, the doctors had to put him back on the paralyzing medications today. He is still on the ventilator and his lungs are filling with fluid so he has had some chest tubes put in to help drain them. The good news is that his vitals are all stable. His next round of chemo is scheduled for Thursday.

The Fat Greek Supports Jordan's Cause!

2009-06-02T15:48:00.000-07:00

We are excited to announce that The Fat Greek in Yucaipa is supporting Jordan's Cause! From now until June 15th, when you go to The Fat Greek and mention Jordan's Cause, they will donate 10% of your bill to The Macias Family Benevolent Fund!

Thank you Fat Greek and thank you Yucaipa!

2009-06-01T23:52:00.000-07:00

Thank you to everyone who went to Jose's today! We heard that it was the biggest fundraiser turn out they could remember! Let's make it even bigger on Wednesday!

Jordan had a long day today. He had a very strong dose of chemo. Unfortunately, he is still on the ventilator. Earlier this evening his vitals weren't where they should be, but the doctors were able to stabilize him. Just a reminder...he is strong and he is a fighter, but he isn't out of the woods yet! Please keep the prayers coming!

Don't Forget...

2009-06-01T08:25:00.000-07:00

Quick reminder...Today is one of the Jose's Days for Jordan! Eat at Jose's in Yucaipa! If you need a flyer, send an email to jordanscause@gmail.com. Thank you for your support!!!

A Step in the Right Direction!

2009-05-31T22:26:00.000-07:00

Today was a good day! As of noon, Jordan has been off of the ECMO machine and is doing really well. His doctors and nurses are amazed at how well he is doing and that things have progressed in the right direction so quickly. Loma Linda has had an ECMO machine since 1988. Jordan is one of the oldest people to be put on this machine. Due to this fact, he is going to be featured in a research study. We are very blessed that this machine was available to Jordan. If not for this machine, he would not be with us today.

The chemo is working, however the mass is still there. His next round will be tomorrow. Jordan is still on a ventilator. The doctors are hoping to get him off of it tomorrow. He was taken off his blood pressure medication today and is still slowly being taken off the paralyzing medications.

Jordan still has a really long road ahead of him, but as of right now, things are looking good! The power of prayer is amazing! Thank you so much for all of the prayers you have said on his behalf! Please keep them coming!